School of Health Professions, University of Plymouth, Plymouth, UK.
School of Health and Life Science, Glasgow Caledonian University, Glasgow, UK.
Disabil Rehabil. 2020 Oct;42(21):3007-3014. doi: 10.1080/09638288.2019.1582717. Epub 2019 Mar 23.
Web-based exercise and physical activity interventions are being developed as a potential way to help people with multiple sclerosis achieve and maintain increased physical activity levels. Seeking feedback from people who have used such interventions will help guide the development process. In-depth interviews were used to explore the experiences of participants who used a web-based physiotherapy intervention as part of a feasibility randomized controlled trial. Interviews were audio-recorded, transcribed verbatim and analyzed using thematic analysis. Eleven people (age 28-68) were interviewed. Most perceived that their physical activity had increased, primarily due to completing twice-weekly web-based physiotherapy sessions. Three key themes were identified. 'It's all in one place' encompasses the value of having a convenient and portable program. 'Keeping an eye' captures people's thoughts regarding the supervision offered by the physiotherapist, through the website, and 'Hopes and expectations' reflects the importance of having opportunity to discuss what may be gained from using such a program. This intervention offered a convenient, flexible and portable physiotherapy program which most people perceived helped them achieve and sustain increased levels of physical activity. Talking with people about expectations is important, particularly if a person's condition is deteriorating.IMPLICATIONS FOR REHABILITATIONWhen discussing the potential benefits of exercise programs with people with multiple sclerosis it is important to have honest and open conversations about the expectations of what may be achieved. This is particularly important for people with progressive disease.Web-based interventions may be most valuable to people who are technology literate, seek flexibility regarding where and when to exercise, prefer to exercise independently and have the confidence and skills to self-manage. ClinicalTrials.gov identifier: NCT02508961.
基于网络的运动和身体活动干预措施正在被开发为帮助多发性硬化症患者提高和保持身体活动水平的一种潜在方法。从使用过此类干预措施的人群中寻求反馈意见将有助于指导开发过程。本研究采用深入访谈法，探究了作为一项可行性随机对照试验的一部分而使用基于网络的物理治疗干预措施的参与者的体验。访谈进行了录音、逐字转录，并使用主题分析进行了分析。共对 11 名（年龄 28-68 岁）参与者进行了访谈。大多数参与者认为他们的身体活动有所增加，主要是因为完成了每周两次的基于网络的物理治疗课程。确定了三个关键主题。“一切都在一个地方”包括拥有一个方便且便携的程序的价值。“保持关注”捕捉到了人们对物理治疗师通过网站提供的监督的想法，而“希望和期望”反映了有机会讨论使用此类程序可能获得的收益的重要性。该干预措施提供了一种方便、灵活且便携的物理治疗方案，大多数参与者认为该方案有助于他们提高和维持身体活动水平。与人们讨论对预期的期望很重要，特别是如果一个人的病情正在恶化的话。
康复启示
在与多发性硬化症患者讨论运动计划的潜在益处时，重要的是要诚实地、公开地讨论可能实现的期望。对于患有进行性疾病的患者，这一点尤为重要。
基于网络的干预措施对那些精通技术、希望灵活安排运动时间和地点、喜欢独立运动以及有信心和技能进行自我管理的人最有价值。
ClinicalTrials.gov 标识符：NCT02508961。
