Tow Kelly E, Rogge Claudia, Lee Thomas, Caputi Peter, Knowles Simon R
Faculty of Social Sciences, University of Wollongong, Wollongong 2522, Australia.
Department of Gastroenterology, Wollongong Hospital, Wollongong 2500, Australia.
Gastroenterol Res Pract. 2019 Feb 17;2019:7618468. doi: 10.1155/2019/7618468. eCollection 2019.
Real-time collection of mental health and disease activity patient-reported outcomes (PROs) are essential to assist clinicians in delivering optimal holistic health care. The aim of this pilot study was to validate a digital support tool (DST) delivered via a tablet device in an outpatient setting to assess IBD activity and psychological distress.
48 individuals (26 females; average age: 40.04) with IBD completed the DST and a paper-based survey in a hospital IBD outpatient setting. PROs for disease activity and psychological distress (Kessler K10) were compared to paper-based gold-standard measures of disease activity (Partial Mayo Index or Harvey Bradshaw Index completed by the clinician) and psychological distress (Depression Anxiety Stress Scale; completed by the patient). Patient feedback regarding usability and acceptance of the DST was also collected.
DST patient-derived disease activity scores were significantly correlated with clinician assessment of disease activity ( < 0.01). Patient DST-derived psychological well-being scores were also significantly correlated with the gold-standard measure of psychological distress ( < 0.05). Patients found the DST to be easy to use and identified a willingness to follow through with the recommendations provided by the DST in relation to their psychological distress scores.
The pilot study demonstrates the value in collecting disease activity and psychological distress PROs via a DST in an outpatient setting. Disease activity and psychological distress PROs were found to correlate significantly with gold standard measures. The findings provide preliminary support for the value of embedding digital technology into clinical care to promote patient engagement and optimal holistic healthcare.
实时收集患者报告的心理健康和疾病活动结果对于帮助临床医生提供最佳的整体医疗保健至关重要。这项试点研究的目的是验证一种通过平板电脑设备在门诊环境中提供的数字支持工具（DST），以评估炎症性肠病（IBD）活动和心理困扰。
48名患有IBD的个体（26名女性；平均年龄：40.04岁）在医院IBD门诊环境中完成了DST和纸质调查问卷。将疾病活动和心理困扰的患者报告结果（凯斯勒K10量表）与疾病活动的纸质金标准测量方法（由临床医生完成的部分梅奥指数或哈维·布拉德肖指数）和心理困扰的测量方法（由患者完成的抑郁焦虑压力量表）进行比较。还收集了患者对DST的可用性和接受度的反馈。
DST得出的患者疾病活动评分与临床医生对疾病活动的评估显著相关（<0.01）。患者DST得出的心理健康评分也与心理困扰的金标准测量方法显著相关（<0.05）。患者发现DST易于使用，并表示愿意遵循DST根据其心理困扰评分提供的建议。
试点研究证明了在门诊环境中通过DST收集疾病活动和心理困扰患者报告结果的价值。发现疾病活动和心理困扰的患者报告结果与金标准测量方法显著相关。这些发现为将数字技术融入临床护理以促进患者参与和最佳整体医疗保健的价值提供了初步支持。
