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如何接受面对死亡:一项定性研究,探讨终末期癌症患者的体验。

How to come to terms with facing death: a qualitative study examining the experiences of patients with terminal Cancer.

机构信息

Department of Nursing, Gunma University Graduate School of Health Sciences, 3-39-22 Showa-machi, Maebashi, Gunma, 371-8514, Japan.

出版信息

BMC Palliat Care. 2019 Apr 4;18(1):33. doi: 10.1186/s12904-019-0417-6.

DOI:10.1186/s12904-019-0417-6
PMID:30947725
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6449951/
Abstract

BACKGROUND

Cancer patients who have reached the terminal stage despite attempts at treatment are likely to experience various problems, particularly as they encounter increasing difficulty in doing what they were able to do easily, and their physical symptoms increase as the disease advances. The purpose of this study is to explore how terminal cancer patients who have not clearly expressed a depressed mood or intense grief manage their feelings associated with anxiety and depression.

METHODS

Eleven terminally ill patients with cancer who were receiving symptom-relieving treatment at home or in palliative care units were interviewed. Interviews were generally conducted weekly, two to five times for each participant. In total, 33 interviews were conducted, and the overall interview time was 2027 min. Data were analyzed via qualitative methods.

RESULTS

The following five themes were extracted regarding the experience of managing feelings associated with anxiety and depression when facing death: "I have to accept that I have developed cancer," "I have to accept the undeniable approach of my own death," "I have to accept my need for assistance," "I have to accept this unsatisfactory circumstance" and "I have to accept this as my destiny and an outcome of my life."

CONCLUSION

The present study revealed key themes related to how patients come to terms with their impending death. Nurses are required to comprehend the patients' complicated mental patterns that are expressed in their daily languages. Furthermore, the findings clarify the necessity for nurses to help patients understand the acceptance of a terminal disease state during a patient's final days.

摘要

背景

癌症患者在经过治疗后仍进入终末期,可能会经历各种问题,尤其是当他们发现自己做曾经轻松完成的事情变得越来越困难,并且随着疾病的进展,身体症状不断增加时。本研究旨在探讨那些没有明显表达抑郁或悲痛情绪的终末期癌症患者如何应对与焦虑和抑郁相关的情绪。

方法

对 11 名在家中或姑息治疗病房接受症状缓解治疗的终末期癌症患者进行了访谈。访谈通常每周进行一次,每位参与者进行 2 到 5 次。总共进行了 33 次访谈,总访谈时间为 2027 分钟。通过定性方法进行数据分析。

结果

在面对死亡时,管理与焦虑和抑郁相关的情绪的体验方面,得出以下五个主题:“我必须接受我已经患有癌症”、“我必须接受自己死亡不可避免的事实”、“我必须接受我需要帮助”、“我必须接受这种不尽如人意的情况”和“我必须接受这是我的命运和我一生的结果”。

结论

本研究揭示了与患者如何接受即将到来的死亡相关的关键主题。护士需要理解患者在日常语言中表达的复杂心理模式。此外,研究结果还阐明了在患者的最后几天,护士有必要帮助患者理解接受终末期疾病状态的必要性。

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