National Health Service, Manises Hospital, Valencia, Spain.
Instituto de Química Médica (CSIC), Madrid, Spain.
Clin Ther. 2019 Apr;41(4):619-624. doi: 10.1016/j.clinthera.2019.02.014. Epub 2019 Apr 1.
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex, heterogeneous and serious disease. In this article, we analyze the cases of 3 patients with ME/CFS. Due to the disbeliefs, misconceptions, and stigmas that are attached to ME/CFS, patient diagnosis is made after years of disease progression. Over this period, physicians tried to determine the etiology of the disease, taking into account its onset and symptoms. The suspected conditions correlated with possible subgroups that researchers speculate may exist in ME/CFS. Therefore, a registry of well-selected data on clinical history could help to cluster patients into more homogenous groups, and could be beneficial for research.
肌痛性脑脊髓炎/慢性疲劳综合征（ME/CFS）是一种复杂、异质且严重的疾病。在本文中，我们分析了 3 例 ME/CFS 患者的病例。由于 ME/CFS 患者被怀疑、误解和污名化，因此患者的诊断是在疾病进展多年后做出的。在此期间，医生试图确定疾病的病因，考虑到其发病和症状。可疑的病症与可能存在于 ME/CFS 中的可能亚组相关。因此，对临床病史进行精选数据的登记可以帮助将患者聚类到更同质的组中，并有助于研究。
