Metro South and Ipswich Nephrology and Transplant Services, Logan Hospital, Brisbane, Queensland, Australia.
Faculty of Medicine, University of Queensland, Brisbane, Queensland, Australia.
Intern Med J. 2019 Apr;49(4):539-544. doi: 10.1111/imj.14244.
Data linkage is a valuable technique for uniting information from multiple sources that relates to the same person, place, family or event. Despite its value, establishing such linkages in Australia remains challenging. Existing policies are a missed opportunity for research and innovation and engender a negative attitude among researchers when considering data linkage as a research means. Greater leadership from the Population Health Research Network and cooperation from data custodians and Human Research Ethics Committees are necessary to access optimally Australia's enormous data potential.
数据链接是一种将来自多个与同一人、地点、家庭或事件相关的信息整合在一起的有用技术。尽管具有价值,但在澳大利亚建立这种链接仍然具有挑战性。现有的政策错失了研究和创新的机会,并在研究人员考虑将数据链接作为一种研究手段时产生了消极态度。人口健康研究网络需要发挥更大的领导力,数据保管人和人类研究伦理委员会需要加强合作,才能最大限度地利用澳大利亚巨大的数据潜力。