Population Health Research Network, University of Western Australia, 35 Stirling Highway, Crawley 6009, Australia.
Int J Environ Res Public Health. 2021 Oct 28;18(21):11339. doi: 10.3390/ijerph182111339.
Population-based data linkage has a long history in Australia from its beginnings in Western Australia in the 1970s to the coordinated national data linkage infrastructure that exists today. This article describes the journey from an idea to a national data linkage network which has impacts on the health and well-being of Australians from preventing developmental anomalies to responding to the COVID-19 pandemic. Many enthusiastic and dedicated people have contributed to Australia's data linkage capability over the last 50 years. They have managed to overcome a number of challenges including gaining stakeholder and community support; navigating complex legal and ethical environments; establishing cross-jurisdictional collaborations, and gaining ongoing financial support. The future is bright for linked data in Australia as the infrastructure built over the last 50 years provides a firm foundation for further expansion and development, ensuring that Australia's linked health and human services data continues to be available to address the evolving challenges of the next half century.
基于人群的数据链接在澳大利亚有着悠久的历史,可以追溯到 20 世纪 70 年代西澳大利亚州的开端,一直到今天协调一致的国家数据链接基础设施。本文描述了从一个想法到国家数据链接网络的发展历程,这对澳大利亚人的健康和福祉产生了影响,从预防发育异常到应对 COVID-19 大流行。在过去的 50 年中,许多热情而专注的人对澳大利亚的数据链接能力做出了贡献。他们成功地克服了许多挑战,包括获得利益相关者和社区的支持;在复杂的法律和伦理环境中进行导航;建立跨司法管辖区的合作关系,并获得持续的财政支持。澳大利亚的链接数据前景光明,因为过去 50 年中建立的基础设施为进一步扩展和发展提供了坚实的基础,确保澳大利亚的链接健康和人类服务数据继续可用,以应对未来半个世纪不断变化的挑战。