Division of Population Health Sciences, Royal College of Surgeons in Ireland, Dublin, Ireland.
School of Physiotherapy, Royal College of Surgeons in Ireland, Dublin, Ireland.
Disabil Rehabil. 2020 Nov;42(23):3359-3369. doi: 10.1080/09638288.2019.1594400. Epub 2019 Apr 11.
: Exploring the views of those impacted by stroke is key to the design of an effective and appropriate cognitive rehabilitation intervention for post-stroke cognitive impairment. This qualitative study examined the perspectives and preferences of stroke survivors, carers, and healthcare professionals to inform the design of a cognitive rehabilitation intervention.: The research employed a qualitative study design and thematic analysis of data. In-depth semi-structured interviews were conducted with stroke survivors ( = 14), carers ( = 11), and healthcare professionals involved in providing stroke care ( = 19). Interviews were audio-recorded and transcribed. Coding was conducted and themes were developed both inductively and deductively.: Themes address five broad areas relevant for the design and implementation of the intervention: (i) activities to include; (ii) when it takes place; (iii) location; (vi) format; (v) who the intervention should include.: Qualitative work with stroke survivors, carers and healthcare professionals provided vital information for the intervention design. Issues identified by participants as being key to intervention development included: (i) implications of post-stroke cognitive impairment survivors' confidence; (ii) their individual capacity in terms of fatigue and metacognition; and (iii) practical issues such as intervention location. The inclusion of psychoeducation regarding consequences of stroke was recommended.Implications for rehabilitationStroke survivors, carers, and rehabilitation professionals who provide stroke care can provide valuable insights and ideas to inform the development of a cognitive rehabilitation intervention.A cognitive rehabilitation intervention should be tailored to patient-specified goals, incorporating both group and individualized activities.Information, education, and communication are required to help stroke survivors and carers understand the cognitive, emotional, and behavioral consequences of stroke.Intervention content should be considerate of stroke survivors' capacity in terms of cognitive impairment and fatigue levels.
探讨受卒中影响人群的观点是设计针对卒中后认知障碍的有效且适宜认知康复干预措施的关键。本定性研究调查了卒中幸存者、照护者和医疗保健专业人员的观点和偏好,为认知康复干预措施的设计提供信息。
研究采用定性研究设计和对数据的主题分析。对 14 名卒中幸存者、11 名照护者和参与提供卒中护理的 19 名医疗保健专业人员进行了深入的半结构式访谈。访谈进行了录音并转录。进行了编码,并通过归纳和演绎方法发展主题。
(i)纳入的活动;(ii)何时进行;(iii)地点;(vi)形式;(v)干预措施应包括的人员。
与卒中幸存者、照护者和医疗保健专业人员的定性工作为干预措施设计提供了重要信息。参与者确定的对干预措施发展至关重要的问题包括:(i)卒中后认知障碍幸存者信心的影响;(ii)他们在疲劳和元认知方面的个人能力;以及(iii)干预地点等实际问题。建议纳入关于卒中后果的心理教育。
康复意义 卒中幸存者、照护者和提供卒中护理的康复专业人员可以提供有价值的见解和想法,为认知康复干预措施的开发提供信息。认知康复干预措施应根据患者指定的目标进行定制,包括团体和个体化活动。需要提供信息、教育和沟通,以帮助卒中幸存者和照护者了解卒中的认知、情感和行为后果。干预内容应考虑到卒中幸存者的认知障碍和疲劳程度。