School of Psychology, University of East London, London, UK.
Director of Black and Minority Ethnic (BME) Cancer Communities, Nottingham, UK.
Ethn Health. 2021 Nov;26(8):1115-1129. doi: 10.1080/13557858.2019.1606162. Epub 2019 Apr 15.
Black men are three times more likely to develop prostate cancer (PCa), to do so at a younger age and to experience a more aggressive form than White men. This study aims to understand the experiences of African-Caribbean men with respect to their discharge to primary care following successful PCa treatment and the challenges associated with survivorship. Eight African-Caribbean men, who had been successfully treated for PCa, were recruited through the charity BME Cancer Communities. They participated in a focus group, which took place on the premises of the charity and was audio-recorded. The recording was transcribed and the data were analysed employing thematic analysis. Three overarching themes were developed: Discharge - misconceptions and uncertainties; Survivorship - challenges and ways of coping; Black men and PCa: real and potential discrimination. Participants expressed concerns regarding the lack of information and clarity about what discharge meant, the quality of follow-up care, especially the levels of specialist knowledge among GPs, and the impact of side-effects, particularly erectile dysfunction (ED). Participants linked ED with stereotypes of Black male sexuality, particularly in relation to difficulties of expressing their emotions and psychological distress. African-Caribbean men face particular challenges in dealing with the side-effects of treatment for PCa, which are linked to socially-constructed ideas of masculinity. There needs to be a greater focus in primary care on understanding these issues and providing individualised culturally-sensitive care. In particular, GPs should be aware of sensitivities concerning help-seeking related to culturally-mediated understandings of masculinity.
黑人患前列腺癌（PCa）的可能性是白人的三倍，发病年龄更小，且更易发展为侵袭性肿瘤。本研究旨在了解非洲裔加勒比男性在成功治疗 PCa 后向初级保健机构出院的经历，以及与生存相关的挑战。通过慈善机构 BME Cancer Communities，我们招募了 8 名成功治疗 PCa 的非洲裔加勒比男性。他们参加了在慈善机构所在地举行的焦点小组，并进行了音频录制。对录音进行了转录，使用主题分析方法对数据进行了分析。确定了三个总体主题：出院-误解和不确定性；生存-挑战和应对方式；黑人男性和 PCa：真实和潜在的歧视。参与者对有关出院含义、后续护理质量（尤其是全科医生的专业知识水平）以及副作用（特别是勃起功能障碍，ED）的信息和清晰度缺乏表示担忧。参与者将 ED 与黑人男性性行为的刻板印象联系起来，特别是在表达情感和心理困扰方面的困难。非洲裔加勒比男性在应对 PCa 治疗的副作用方面面临特殊挑战，这些副作用与社会构建的男子气概观念有关。初级保健机构需要更加关注理解这些问题，并提供个体化的、文化敏感的护理。特别是全科医生应该意识到与寻求帮助相关的敏感性，这些敏感性与文化介导的男子气概观念有关。
