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回忆癌症患儿及其父母的急性和慢性事件:一项探索性研究。

Reminiscing on acute and chronic events in children with cancer and their parents: An exploratory study.

作者信息

Guidotti Laura, Solari Federica, Bertolini Patrizia, Gebennini Erika, Ghiaroni Giulia, Corsano Paola

机构信息

Department of Humanities, Social Sciences and Cultural Industries, University of Parma, Parma, Italy.

Department of Pediatrics, University-Hospital of Parma, Parma, Italy.

出版信息

Child Care Health Dev. 2019 Jul;45(4):568-576. doi: 10.1111/cch.12673. Epub 2019 May 8.

Abstract

BACKGROUND

Children with cancer live through intense emotional experiences that call for coping with stressful events. The narration of these events allows them to construct a detailed memory system, fostering the elaboration and attribution of meaning to the disease experience. In particular, shared memory between the parent and the child about past events (i.e., reminiscing) helps children to deal with negative emotional experiences, encouraging emotional regulation and adaptive coping strategies. The present study aims to investigate reminiscing in parent-child with cancer dyads, focusing on parents' reminiscing habits, parents' reminiscing style about acute and chronic events, and children's well-being, assessed with respect to emotional regulation and coping skills.

METHOD

Fifteen children from ages 4 to 8 years admitted to a paediatric haematology and oncology ward of an Italian hospital, and their parents were engaged in a reminiscing conversation about acute and chronic events related to disease. Moreover, some questionnaires have been proposed to evaluate parents' reminiscing habits and children's emotional regulation and coping skills. Descriptive and quantitative analyses were conducted.

RESULTS

The data showed that parents frequently practise reminiscing in everyday life, focusing on directive and socioemotional functions. In reminiscing conversations about acute and chronic events concerning their child's illness, they use an elaborative reminiscing style and an emotional reminiscing style mainly concerning chronic events. A positive correlation between this reminiscing style and children's adaptive coping strategies was found mainly in acute events. A negative correlation emerged between parents' emotional terms (emotional reminiscing) and children's difficulties in emotional regulation.

CONCLUSION

This study underlines the benefits of elaborative and emotional reminiscing conversation, in order to help children with cancer and their families to cope with acute and chronic stressful events. Reminiscing can be a useful methodology for health professionals with a view to collecting information on patients' memories of illness.

摘要

背景

患有癌症的儿童经历着强烈的情感体验,这需要他们应对压力事件。对这些事件的叙述使他们能够构建一个详细的记忆系统,促进对疾病经历的阐述和意义归因。特别是,父母与孩子之间关于过去事件的共同记忆(即回忆往事)有助于孩子应对负面情绪体验,鼓励情绪调节和适应性应对策略。本研究旨在调查癌症患儿亲子对之间的回忆往事情况,重点关注父母的回忆习惯、父母对急性和慢性事件的回忆风格,以及从情绪调节和应对技能方面评估孩子的幸福感。

方法

意大利一家医院儿科血液科和肿瘤科病房收治的15名4至8岁儿童及其父母参与了一场关于与疾病相关的急性和慢性事件的回忆对话。此外,还发放了一些问卷来评估父母的回忆习惯以及孩子的情绪调节和应对技能。进行了描述性和定量分析。

结果

数据显示,父母在日常生活中经常回忆往事,重点关注指导性和社会情感功能。在关于孩子疾病的急性和慢性事件的回忆对话中,他们主要针对慢性事件采用详尽回忆风格和情感回忆风格。这种回忆风格与孩子的适应性应对策略之间的正相关主要出现在急性事件中。父母的情感表达(情感回忆)与孩子在情绪调节方面的困难之间呈现负相关。

结论

本研究强调了详尽和情感回忆对话的益处,以帮助癌症患儿及其家庭应对急性和慢性压力事件。回忆往事对于健康专业人员来说可能是一种有用的方法,有助于收集患者对疾病记忆的信息。

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