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背负艾滋污名:中国西南地区的经历与应对策略

Bearing the Stigma of HIV: Experiences and Coping Strategies in Southwest China.

作者信息

Yu Yeon Jung, Li Xiaoming, Qiao Shan, Zhou Yuejiao

机构信息

Department of Anthropology, Western Washington University, Bellingham, WA.

Arnold School of Public Health, University of South Carolina, Columbia, SC.

出版信息

World Health Popul. 2018 Jan;17(4):5-17. doi: 10.12927/whp.2018.25404.

Abstract

Even as the number of people living with HIV (PLWH) is rapidly increasing in China, qualitative studies investigating the effect of HIV stigma on daily lives remain limited. The current study aims to fill this gap in research with attention to not only the experiences but also the coping strategies of PLWH in southwest China. We conducted 90 in-depth interviews in Guangxi, China. Our participants included both PLWH and individuals in their surrounding community (e.g., spouse, children, health workers). Our interview data showed an intense manifestation of HIV stigma in domestic spheres. Other close community members (e.g., relatives, friends, neighbours) also worked both to discriminate against PLWH and simultaneously thwart possible stigma by association. By explaining how stigma affects both PLWH and their family members, the current study seeks to help both citizens and health practitioners better understand the effects of stigma on PLWH, their friends and their families.

摘要

尽管中国的艾滋病毒感染者人数正在迅速增加,但针对艾滋病毒污名化对日常生活影响的定性研究仍然有限。当前的研究旨在填补这一研究空白,不仅关注中国西南部艾滋病毒感染者的经历,还关注他们的应对策略。我们在中国广西进行了90次深入访谈。我们的参与者包括艾滋病毒感染者及其周围社区的个人(如配偶、子女、医护人员)。我们的访谈数据显示,艾滋病毒污名化在家庭领域有强烈表现。其他亲密的社区成员(如亲戚、朋友、邻居)既对艾滋病毒感染者进行歧视,同时又努力避免因关联而可能产生的污名。通过解释污名如何影响艾滋病毒感染者及其家庭成员,本研究旨在帮助公众和医护人员更好地理解污名对艾滋病毒感染者、其朋友和家人的影响。

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