Chiauzzi Emil, Newell Amy
PatientsLikeMe, Inc, Cambridge, MA, United States.
Wistia, Cambridge, MA, United States.
JMIR Ment Health. 2019 Apr 22;6(4):e12292. doi: 10.2196/12292.
For many people who use mobile apps, the primary motivations are entertainment, news, gaming, social connections, or productivity. For those experiencing health problems, particularly those with chronic conditions such as psychiatric disorders, the stakes are much higher. The digital tools that they select may be the difference between improvement and decompensation or even life and death. Although there has been a wide expansion of mental health apps with promise as well as hype, the current means of researching, evaluating, and deploying effective tools have been problematic. As a means of gaining a perspective that moves beyond usability testing, surveys, and app ratings, the primary objective of this patient perspective is to question the killer app and condition-specific mentality of current mental health app development. We do this by reviewing the current mobile mental health app literature, identifying ways in which psychiatric patients use apps in their lives, and then exploring how these issues are experienced by a software engineer who has struggled with her bipolar disorder for many years. Her lived experience combined with a technology perspective offers potential avenues for using technology productively in psychiatric treatment. We believe that this responds to JMIR Publications' call for patient perspective papers and provides encouragement for patients to share their views on mental health and technology.
对于许多使用移动应用程序的人来说,主要动机是娱乐、新闻、游戏、社交联系或提高工作效率。对于那些有健康问题的人,尤其是患有精神疾病等慢性病的人来说,风险要高得多。他们选择的数字工具可能决定着病情好转与恶化的差异,甚至是生死之别。尽管心理健康应用程序大量涌现,既有前景又备受炒作,但目前研究、评估和部署有效工具的方式一直存在问题。作为一种超越可用性测试、调查和应用程序评级的视角,本患者视角的主要目标是质疑当前心理健康应用程序开发中追求杀手级应用程序和针对特定病症的思维方式。我们通过回顾当前的移动心理健康应用程序文献、确定精神疾病患者在生活中使用应用程序的方式,然后探讨一位多年来一直在与双相情感障碍作斗争的软件工程师如何看待这些问题来实现这一目标。她的亲身经历与技术视角相结合,为在精神疾病治疗中有效利用技术提供了潜在途径。我们相信,这回应了JMIR Publications对患者视角论文的呼吁,并鼓励患者分享他们对心理健康和技术的看法。