Bezerra Giordan Leticia, Ronto Rimante, Chau Josephine, Chow Clara, Laranjo Liliana
Westmead Applied Research Centre, University of Sydney, Sydney, Australia.
Department of Health Systems and Populations, Faculty of Medicine, Health and Human Sciences, Macquarie University, Sydney, Australia.
JMIR Cardio. 2022 Apr 20;6(1):e33992. doi: 10.2196/33992.
Mobile apps have the potential to support patients with heart failure and facilitate disease self-management, but this area of research is recent and rapidly evolving, with inconsistent results for efficacy. So far, most of the published studies evaluated the feasibility of a specific app or assessed the quality of apps available in app stores. Research is needed to explore patients' and clinicians' perspectives to guide app development, evaluation, and implementation into models of care.
This study aims to explore the patient and primary care clinician perspective on the facilitators and barriers to using mobile apps, as well as desired features, to support heart failure self-management.
This is a qualitative phenomenological study involving face-to-face semistructured interviews. Interviews were conducted in a general practice clinic in Sydney, Australia. Eligible participants were adult patients with heart failure and health care professionals who provided care to these patients at the clinic. Patients did not need to have previous experience using heart failure mobile apps to be eligible for this study. The interviews were audio-recorded, transcribed, and analyzed using inductive thematic data analysis in NVivo 12.
A total of 12 participants were interviewed: 6 patients (mean age 69 [SD 7.9] years) and 6 clinicians. The interviews lasted from 25 to 45 minutes. The main facilitators to the use of apps to support heart failure self-management were communication ability, personalized feedback and education, and automated self-monitoring. Patients mentioned that chat-like features and ability to share audio-visual information can be helpful for getting support outside of clinical appointments. Clinicians considered helpful to send motivational messages to patients and ask them about signs and symptoms of heart failure decompensation. Overall, participants highlighted the importance of personalization, particularly in terms of feedback and educational content. Automated self-monitoring with wireless devices was seen to alleviate the burden of tracking measures such as weight and blood pressure. Other desired features included tools to monitor patient-reported outcomes and support patients' mental health and well-being. The main barriers identified were the patients' unwillingness to engage in a new strategy to manage their condition using an app, particularly in the case of low digital literacy. However, clinicians mentioned this barrier could potentially be overcome by introducing the app soon after an exacerbation, when patients might be more willing to improve their self-management and avoid rehospitalization.
The use of mobile apps to support heart failure self-management may be facilitated by features that increase the usefulness and utility of the app, such as communication ability in-between consultations and personalized feedback. Also important is facilitating ease of use by supporting automated self-monitoring through integration with wireless devices. Future research should consider these features in the co-design and testing of heart failure mobile apps with patients and clinicians.
移动应用程序有潜力支持心力衰竭患者并促进疾病自我管理,但这一研究领域尚新且发展迅速,疗效结果并不一致。到目前为止,大多数已发表的研究评估了特定应用程序的可行性或评估了应用商店中可用应用程序的质量。需要开展研究以探索患者和临床医生的观点,从而指导应用程序的开发、评估以及将其纳入护理模式。
本研究旨在探讨患者和初级保健临床医生对于使用移动应用程序支持心力衰竭自我管理的促进因素和障碍以及期望功能的看法。
这是一项定性现象学研究,涉及面对面的半结构化访谈。访谈在澳大利亚悉尼的一家普通诊所进行。符合条件的参与者为成年心力衰竭患者以及在该诊所为这些患者提供护理的医疗保健专业人员。患者无需有使用心力衰竭移动应用程序的既往经验即可参与本研究。访谈进行录音、转录,并使用NVivo 12中的归纳主题数据分析方法进行分析。
共访谈了12名参与者:6名患者(平均年龄69岁[标准差7.9岁])和6名临床医生。访谈持续25至45分钟。使用应用程序支持心力衰竭自我管理的主要促进因素包括沟通能力、个性化反馈和教育以及自动自我监测。患者提到类似聊天的功能以及共享视听信息的能力有助于在临床预约之外获得支持。临床医生认为向患者发送激励信息并询问他们心力衰竭失代偿的体征和症状会有所帮助。总体而言,参与者强调了个性化的重要性,特别是在反馈和教育内容方面。使用无线设备进行自动自我监测被认为减轻了跟踪体重和血压等指标的负担。其他期望功能包括监测患者报告结局的工具以及支持患者的心理健康和幸福感。确定的主要障碍是患者不愿意采用使用应用程序来管理其病情的新策略,尤其是在数字素养较低的情况下。然而,临床医生提到,在病情加重后不久引入应用程序,当患者可能更愿意改善自我管理并避免再次住院时,这一障碍可能会被克服。
使用移动应用程序支持心力衰竭自我管理可能会因增加应用程序实用性和效用的功能而得到促进,例如会诊之间的沟通能力和个性化反馈。通过与无线设备集成支持自动自我监测以促进易用性也很重要。未来的研究应在与患者和临床医生共同设计和测试心力衰竭移动应用程序时考虑这些功能。