生命与照护中的尊严：瑞典姑息治疗背景下患者的观点
Dignity in life and care: the perspectives of Swedish patients in a palliative care context.
作者信息
Bylund-Grenklo Tove, Werkander-Harstäde Carina, Sandgren Anna, Benzein Eva, Östlund Ulrika
机构信息
Senior Lecturer, Department of Caring Science, University of Gävle, and (affiliated) Department of Oncology Pathology, Karolinska Institutet, Stockholm, Sweden.
Senior Lecturer, Department of Health and Caring Sciences, Linnaeus University, Växjö, and Center for Collaborative Palliative Care, Department of Health and Caring Sciences, Linnaeus University, Växjö, Sweden.
出版信息
Int J Palliat Nurs. 2019 Apr 2;25(4):193-201. doi: 10.12968/ijpn.2019.25.4.193.
BACKGROUND
How patients preserve their sense of dignity in life is an important area of palliative care that remains to be explored.
AIMS
To describe patients' perspectives of what constitutes a dignified life within a palliative care context.
METHODS
Twelve palliative care patients were interviewed about their views on living with dignity. Data were analysed using qualitative content analysis.
RESULTS
What constitutes a dignified life during end-of-life care was captured by the theme 'I may be ill but I am still a human being' and presented under the categories 'preserving my everyday life and personhood', 'having my human value maintained by others through 'coherence' and 'being supported by society at large'.
CONCLUSION
Patients' sense of dignity can be preserved by their own attitudes and behaviours, by others and through public support. Health professionals need to adopt a dignity-conserving approach, for which awareness of their own attitudes and behaviours is crucial.
背景
患者如何在生活中维护自己的尊严感是姑息治疗中一个有待探索的重要领域。
目的
描述患者对姑息治疗背景下有尊严生活的构成要素的看法。
方法
对12名姑息治疗患者进行访谈，了解他们对有尊严生活的看法。采用定性内容分析法对数据进行分析。
结果
“我可能生病但我仍然是一个人”这一主题体现了临终关怀期间有尊严生活的构成要素，并在“保持我的日常生活和人格”、“他人通过‘连贯性’维护我的人的价值”以及“得到整个社会的支持”等类别下呈现。
结论
患者的尊严感可以通过他们自己的态度和行为、他人以及公众支持来维护。卫生专业人员需要采取维护尊严的方法，而意识到他们自己的态度和行为至关重要。
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