Center for Clinical Epidemiology and Evidence-based Medicine, Beijing Children's Hospital, Capital Medical University, National Center for Children's Health, Beijing, 100045, China.
School of Nursing, Capital Medical University, 10 Xitoutiao, Youanmen Wai, Fengtai District, Beijing, 100069, China.
BMC Palliat Care. 2023 Jul 5;22(1):86. doi: 10.1186/s12904-023-01206-4.
The Chochinov Dignity Model was developed based on a cohort of adult patients with advanced cancer, but its role among dying children is not clear. This study aims to develop a model of dignity for children receiving pediatric palliative care based on the Chochinov Dignity Model.
This is a descriptive qualitative study. Participants included a total of 11 parents and 14 healthcare providers who were recruited from a tertiary children's hospital in Beijing and the Pediatric Palliative Care Subspecialty Group of the Pediatrics Society of the Chinese Medical Association using purposive sampling. Thematic framework analysis was used to analyze data.
The themes of the empirical Dignity Model were broadly supported in this study, but some themes were interpreted differently in the child population. Compared with the original model, some child-specific themes were identified including acknowledging regret, a sense of security, the company of important loved ones, realizing unfinished wishes, decent and dignified death, resolving family disputes, and fairness.
This is the first study on Dignity Model for terminal children. Knowledge of children's dignity can promote reflection of healthcare providers and caregivers regarding the values underlying their performance in pediatric palliative care, and develop certain practical interventions to strengthen children and their families' sense of dignity at end of life.
Chochinov 尊严模型是基于一组晚期癌症成年患者开发的，但它在临终儿童中的作用尚不清楚。本研究旨在基于 Chochinov 尊严模型为接受儿科姑息治疗的儿童开发尊严模型。
这是一项描述性的定性研究。参与者包括总共 11 名父母和 14 名医疗保健提供者，他们是通过目的抽样从北京的一家三级儿童医院和中华医学会儿科学会儿科姑息治疗专业组招募的。采用主题框架分析法对数据进行分析。
本研究广泛支持尊严模型的实证主题，但在儿童群体中对某些主题的解释有所不同。与原始模型相比，确定了一些特定于儿童的主题，包括承认遗憾、安全感、重要亲人的陪伴、实现未完成的愿望、体面而有尊严的死亡、解决家庭纠纷和公平。
这是首个关于终末期儿童尊严模型的研究。对儿童尊严的认识可以促进医疗保健提供者和护理人员反思他们在儿科姑息治疗中表现背后的价值观，并制定某些切实可行的干预措施，以加强儿童及其家庭在生命末期的尊严感。
