Petrie Tracy, Samatham Ravikant, Goodyear Shaun M, Webster Dan E, Leachman Sancy A
Department of Dermatology, Oregon Health & Science University, Portland, Oregon.
Knight Cancer Institute, Oregon Health & Science University, Portland, Oregon.
Semin Cutan Med Surg. 2019 Mar 1;38(1):E49-E56. doi: 10.12788/j.sder.2019.001.
Advancements in smartphone technologies and the use of specialized health care applications offer an exciting new era to promote melanoma awareness to the public and improve education and prevention strategies. These applications also afford an opportunity to power meaningful research aimed at improving image diagnostics and early melanoma detection. Here, we summarize our experience associated with developing and managing the implementation of MoleMapper™, a research-based application that not only provides an efficient way for users to digitally track images of moles and facilitate skin self-examinations but also provides a platform to crowdsource research participants and the curation of mole images in efforts to advance melanoma research. Obtaining electronic consent, safeguarding participant data, and employing a framework to ensure collection of meaningful data represent a few of the inherent difficulties associated with orchestrating such a wide-scale research enterprise. In this review, we discuss strategies to overcome these and other challenges leading to the implementation of MoleMapper™.
智能手机技术的进步以及专业医疗保健应用程序的使用，为向公众普及黑色素瘤知识、改进教育和预防策略开启了一个令人兴奋的新时代。这些应用程序还为开展旨在改善图像诊断和早期黑色素瘤检测的有意义研究提供了契机。在此，我们总结了开发和管理MoleMapper™应用程序实施过程中的经验，这是一款基于研究的应用程序，不仅为用户提供了一种高效的方式来数字跟踪痣的图像并促进皮肤自我检查，还提供了一个众包研究参与者和策划痣图像的平台，以推动黑色素瘤研究。获取电子同意书、保护参与者数据以及采用一个框架来确保收集有意义的数据，是协调如此大规模研究项目所面临的一些固有困难。在这篇综述中，我们讨论了克服这些以及其他挑战以实现MoleMapper™应用程序实施的策略。
