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因胎儿畸形而终止妊娠的女性的支持性需求:来自伊朗女性、男性和医疗保健提供者视角的定性研究。

Supportive needs of women who have experienced pregnancy termination due to fetal abnormalities: a qualitative study from the perspective of women, men and healthcare providers in Iran.

机构信息

Student Research Committee, School of Nursing and Midwifery, Isfahan University of Medical Sciences, Isfahan, Iran.

Department of Midwifery, College of Nursing and Midwifery, Rasht Branch, Islamic Azad University, Rasht, Iran.

出版信息

BMC Public Health. 2019 May 3;19(1):507. doi: 10.1186/s12889-019-6851-9.

Abstract

BACKGROUND

Extensive application of screening tests for early diagnosis of fetal abnormalities would justify support for women who are facing pregnancy termination due to fetal abnormalities. Considering the lack of available information regarding supportive sources for these people, the present study was conducted to determine the supportive needs of women who have experienced pregnancy termination due to fetal abnormalities.

METHODS

The present research was a qualitative study. The participants were selected using a purposeful sampling method with maximum variation. Data were collected through in-depth personal interviews and taking of field notes and were analyzed simultaneously using conventional content analysis.

RESULTS

The main categories that appeared in the present study included "support from the husband" with sub-categories of "mental support and necessary accompaniments", "participating in planning for future pregnancy" and "financial support to pay the costs of diagnosis and follow-up", "support from the family and friends" with sub-categories of "helping in taking care of other children", "help in performing daily activities" and "empathy, companionship and necessary support to maintain mental peace" and finally "support from peers" with sub-categories of "communicating with the peers and receiving information from them" and "creating a sense of confidence and hopefulness".

CONCLUSIONS

Results of the present study, by determining and highlighting the supportive needs of women who have experienced pregnancy termination due to fetal abnormalities, could be an appropriate basis for providing effective strategies to improve constant participation of the husbands, family members and the peers along with other professional care.

摘要

背景

广泛应用筛查试验对胎儿异常进行早期诊断,这将为因胎儿异常而面临终止妊娠的女性提供支持。鉴于缺乏有关这些人支持来源的可用信息,本研究旨在确定因胎儿异常而终止妊娠的女性的支持需求。

方法

本研究为定性研究。采用最大变异的目的性抽样方法选择参与者。通过深入的个人访谈收集数据,并记录现场笔记,同时使用常规内容分析进行分析。

结果

本研究的主要类别包括“丈夫的支持”,其下有“精神支持和必要的陪伴”、“参与未来妊娠计划”和“提供经济支持以支付诊断和随访费用”;“家庭和朋友的支持”,其下有“帮助照顾其他孩子”、“帮助完成日常活动”和“同理心、陪伴和必要的支持以保持精神平静”;最后是“同龄人的支持”,包括“与同龄人交流并从中获得信息”和“建立信心和希望感”。

结论

本研究通过确定和强调因胎儿异常而终止妊娠的女性的支持需求,为提供有效的策略提供了适当的基础,以改善丈夫、家庭成员和同龄人以及其他专业护理人员的持续参与。

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Fetal Concerns Program: a model for perinatal palliative care.胎儿关怀项目:围产期姑息治疗模式
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