Leuthner Steven, Jones Emilie Lamberg
Department of Population Health, Medical College of Wisconsin, Children's Hospital of Wisconsin, Wauwatosa, USA.
MCN Am J Matern Child Nurs. 2007 Sep-Oct;32(5):272-8. doi: 10.1097/01.NMC.0000287996.90307.c6.
Advances in fetal diagnostics have resulted in families facing a pregnancy complicated by a fetal health concern. Perinatal literature supports that these families benefit from extensive counseling and education presented by a multidisciplinary team. In the program described in this article, perinatal palliative care planning is offered to families who have been told that their fetus has a potentially lethal prognosis. Called the "Fetal Concerns Program," it was developed to address the complex needs of families whose fetus has anomalies. This article reviews perinatal palliative care concepts and describes the Fetal Concerns Program's development as a perinatal palliative care service within a broader program. The special role of the nurse coordinator of the Fetal Concerns Program is highlighted.
胎儿诊断技术的进步使得一些家庭面临因胎儿健康问题而变得复杂的妊娠情况。围产期文献表明,这些家庭能从多学科团队提供的广泛咨询和教育中受益。在本文所述的项目中,为那些被告知其胎儿预后可能致命的家庭提供围产期姑息治疗规划。该项目名为“胎儿问题项目”,旨在满足胎儿患有异常情况的家庭的复杂需求。本文回顾了围产期姑息治疗的概念,并描述了“胎儿问题项目”作为更广泛项目中的围产期姑息治疗服务的发展情况。文中还强调了“胎儿问题项目”护士协调员的特殊作用。