Drexel University, USA.
Health (London). 2019 Jul;23(4):385-400. doi: 10.1177/1363459319848038. Epub 2019 May 8.
In this article, I consider how patients are disempowered through the commercial access to their health data in the United States. I examine two healthcare information technology bills that ostensibly give patients access and control over their health records. However, I contend that, since these regulations were drafted, in part or in whole, by corporate interests represented by healthcare lobbyists, policymakers use the rhetorical device of patient empowerment to allow for the commercial access to patient data, which ultimately disempowers patients. This is because in both bills the asymmetrical relationship to patient data remains the same: patients do not have ownership or control over the data that they produce. Rather, policymakers legislatively cede control over patient data to commercial interests.
在本文中，我考虑了在美国，患者的权利是如何通过商业途径获取其健康数据而被削弱的。我研究了两项医疗保健信息技术法案，这些法案表面上赋予了患者访问和控制其健康记录的权利。然而，我认为，由于这些法规部分或全部是由医疗保健说客代表的企业利益起草的，政策制定者利用赋予患者权力的修辞手段来允许商业途径获取患者数据，这最终削弱了患者的权力。这是因为在这两项法案中，患者与数据的不对称关系保持不变：患者对他们产生的数据没有所有权或控制权。相反，政策制定者通过立法将患者数据的控制权让渡给商业利益。
