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评估卢旺达糖尿病患者开发其首款糖尿病自我管理智能手机应用程序(Kir'App)的需求和期望。

Assessment of Rwandan diabetic patients' needs and expectations to develop their first diabetes self-management smartphone application (Kir'App).

作者信息

Kabeza Claudine B, Harst Lorenz, Schwarz Peter E H, Timpel Patrick

机构信息

College of Medicine and Health Sciences, University of Rwanda, Rwanda.

Faculty of Medicine Carl Gustav Carus, Technische Universität Dresden, Dresden, Germany.

出版信息

Ther Adv Endocrinol Metab. 2019 Apr 26;10:2042018819845318. doi: 10.1177/2042018819845318. eCollection 2019.

Abstract

BACKGROUND

Knowledge of and coping with diabetes is still poor in some communities in Rwanda. While smartphone applications (or apps) have demonstrated improving diabetes self-care, there is no current study on the use of smartphones in the self-management of diabetes in Rwanda.

METHODS

The main objective of this study was to assess the needs and expectations of Rwandan diabetic patients for mobile-health-supported diabetes self-management in order to develop a patient-centred smartphone application (Kir'App).

RESULTS

Convenience sampling was used to recruit study participants at the Rwanda Diabetes Association. Twenty-one patients participated in semi-structured, in-depth, face-to-face interviews. Thematic analysis was performed using Mayring's method of qualitative content analysis.

CONCLUSIONS

The study included 21 participants with either type 1 (female = 5, male = 6) or type 2 (female = 6, male = 4) diabetes. Participants' age ranged from 18 to 69 years with a mean age of 35 and 29 years, respectively. Eight main themes were identified. These were (a) diabetes education and desired information provision; (b) lack of diabetes knowledge and awareness; (c) need for information in crisis situations; (d) required monitoring and reminder functions; (e) information on nutrition and alcohol consumption; (f) information on physical activity; (g) coping with burden of disease, through social support and network; (h) app features. This study provides recommendations that will be used to design the features of the first Rwandan diabetes self-management smartphone application (Kir'App). The future impact of the application on the Rwandan diabetic patients' self-management capacity and quality of life will be evaluated afterwards.

摘要

背景

在卢旺达的一些社区,对糖尿病的认知和应对能力仍然较差。虽然智能手机应用程序(或应用)已被证明可改善糖尿病自我护理,但目前尚无关于卢旺达糖尿病自我管理中使用智能手机的研究。

方法

本研究的主要目的是评估卢旺达糖尿病患者对移动健康支持的糖尿病自我管理的需求和期望,以便开发以患者为中心的智能手机应用程序(Kir'App)。

结果

采用便利抽样法在卢旺达糖尿病协会招募研究参与者。21名患者参与了半结构化、深入的面对面访谈。使用梅林的定性内容分析法进行主题分析。

结论

该研究纳入了21名1型糖尿病患者(女性 = 5名,男性 = 6名)或2型糖尿病患者(女性 = 6名,男性 = 4名)。参与者年龄在18至69岁之间,平均年龄分别为35岁和29岁。确定了八个主要主题。这些主题分别是:(a)糖尿病教育和所需信息提供;(b)糖尿病知识和意识缺乏;(c)危机情况下的信息需求;(d)所需的监测和提醒功能;(e)营养和饮酒信息;(f)体育活动信息;(g)通过社会支持和网络应对疾病负担;(h)应用程序功能。本研究提供了一些建议,将用于设计首款卢旺达糖尿病自我管理智能手机应用程序(Kir'App)的功能。随后将评估该应用程序对卢旺达糖尿病患者自我管理能力和生活质量的未来影响。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6884/6487763/3d4fc3f56fb0/10.1177_2042018819845318-fig1.jpg

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