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青少年神经性厌食症家庭式住院治疗的患者满意度:患者及家长的回顾性看法

User satisfaction with family-based inpatient treatment for adolescent anorexia nervosa: retrospective views of patients and parents.

作者信息

Halvorsen Inger, Rø Øyvind

机构信息

1Regional Department for Eating Disorders, Division of Mental Health and Addiction, Oslo University Hospital - Ullevål Hospital, P.O. Box 4956, Nydalen, N-0424 Oslo, Norway.

2Division of Mental Health and Addiction, Institute of Clinical Medicine, University of Oslo, Oslo, Norway.

出版信息

J Eat Disord. 2019 May 2;7:12. doi: 10.1186/s40337-019-0242-6. eCollection 2019.

Abstract

BACKGROUND

Research is scarce on patient and parent satisfaction with family-based treatment for adolescent anorexia nervosa (AN), especially family-based treatment adapted to inpatient settings. The purpose of this study was to describe and compare patient and parent satisfaction with an inpatient family-based treatment program for adolescent AN, and to investigate whether the level of satisfaction with treatment was associated with eating disorder outcome.

METHODS

Former patients and their parents were contacted approximately five years (4.5 ± 1.7, range: 1.3-7.0) after discharge from family-based inpatient treatment. Ninety-four participants (patients:  = 34, mothers:  = 40, fathers:  = 20) from 46/58 (79.3%) families took part in the study. Former patients and both parents completed treatment satisfaction questionnaires. Outcome at follow-up was assessed by the Eating Disorder Examination Questionnaire and body mass index (kg/m).

RESULTS

Overall, mothers and fathers reported a high level of satisfaction with treatment, while the former patients' satisfaction was moderate. There were no significant differences between treatment satisfaction scores for mothers and fathers. However, the former patients' treatment satisfaction scores were significantly lower than the parents' scores on several of the items. Correlations between eating disorder outcome parameters and treatment satisfaction were small, except for fathers' satisfaction with treatment and weight outcome at follow-up.

DISCUSSION

Family-based treatment adapted to inpatient settings is a novel treatment approach for adolescents with AN that require hospitalization. Inclusion and empowerment of parents are considered crucial in outpatient family-based treatment, but may be just as important in inpatient programs. Mothers and fathers alike reported high levels of satisfaction with treatment, which may constitute an important factor in the success of family-based treatment.

CONCLUSION

Family-based inpatient treatment for adolescents with severe AN who have failed to respond to outpatient treatment seemed to be highly valued by parents and viewed by adolescents as acceptable. Parental satisfaction with their child's treatment is likely to be an important factor for treatment implementation and adherence both in outpatient and inpatient settings.

摘要

背景

关于患者及家长对青少年神经性厌食症(AN)家庭治疗的满意度的研究较少,尤其是针对住院环境下的家庭治疗。本研究的目的是描述并比较患者及家长对青少年AN住院家庭治疗项目的满意度,并调查治疗满意度水平是否与饮食失调结局相关。

方法

在基于家庭的住院治疗出院后约五年(4.5±1.7,范围:1.3 - 7.0)联系了既往患者及其家长。来自46/58(79.3%)个家庭的94名参与者(患者 = 34名,母亲 = 40名,父亲 = 20名)参与了研究。既往患者及其父母均完成了治疗满意度问卷。随访时的结局通过饮食失调检查问卷和体重指数(kg/m)进行评估。

结果

总体而言,母亲和父亲对治疗的满意度较高,而既往患者的满意度为中等。母亲和父亲的治疗满意度得分之间无显著差异。然而,在几个项目上,既往患者的治疗满意度得分显著低于家长的得分。除了父亲对治疗的满意度与随访时的体重结局外,饮食失调结局参数与治疗满意度之间的相关性较小。

讨论

适用于住院环境的家庭治疗是一种针对需要住院治疗的青少年AN的新型治疗方法。在门诊家庭治疗中,家长的参与和赋权被认为至关重要,但在住院项目中可能同样重要。母亲和父亲都对治疗表示高度满意,这可能是家庭治疗成功的一个重要因素。

结论

对于门诊治疗无效的重度AN青少年患者,基于家庭的住院治疗似乎受到家长的高度重视,并且青少年认为是可以接受的。家长对其孩子治疗的满意度可能是门诊和住院环境中治疗实施和依从性的一个重要因素。

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