O'Hanlon Claire E
Greater Los Angeles Health System, US Department of Veterans Affairs, Los Angeles, CA, USA.
RAND Corporation, Department of Economics, Sociology and Statistics, Santa Monica, CA, USA.
Digit Health. 2019 May 1;5:2055207619844865. doi: 10.1177/2055207619844865. eCollection 2019 Jan-Dec.
Heart disease kills nearly 300,000 US women annually, while approximately 40,000 US women die of breast cancer. Breast cancer online patient communities are well known for their high engagement and emotional support. This exploratory study compared social media discourse on breast cancer with discourse related to heart disease.
Computer-assisted text analysis of two corpora composed of Twitter posts using #BreastCancer and #HeartDisease hashtags from December 2013 to December 2014. Lexical analysis (word and hashtag level) used AntConc software and lexicogrammatical analysis (style and stance) was conducted with DocuScope.
The #BreastCancer corpus consisted of 592,046 posts, 57% of which were not original to the user (retweets). #HeartDisease had 269,769 posts (13% retweets). Social media discourse about #BreastCancer and #HeartDisease drew attention to women, new developments, appeals for help and disease risks. The #BreastCancer corpus incorporates gendered language and associations with art and activism, while posts about #HeartDisease were discussed scientifically in concert with other diseases. The #BreastCancer corpus uniquely included community-specific initialism hashtags. Stance analysis of the #BreastCancer corpus revealed more socially oriented posts, marked by language of constructive reasoning, inclusive language and abstract thought, while #HeartDisease corpus posts were more scholarly, used contingent and oppositional reasoning, language from institutional and academic registers, citations and meta-discourse.
The #HeartDisease social media community is less engaged, and content is less specific to both the disease and individual experience than #BreastCancer. Cultivating a women-focused heart disease online community might replicate some of the #BreastCancer community's successes.
心脏病每年导致近30万美国女性死亡,而约4万美国女性死于乳腺癌。乳腺癌在线患者社区以其高度参与度和情感支持而闻名。这项探索性研究比较了社交媒体上关于乳腺癌的讨论与心脏病相关讨论。
对两个语料库进行计算机辅助文本分析,语料库由2013年12月至2014年12月使用#乳腺癌和#心脏病标签的推特帖子组成。词汇分析(单词和标签层面)使用AntConc软件,词汇语法分析(风格和立场)使用DocuScope进行。
#乳腺癌语料库包含592,046条帖子,其中57%不是用户原创(转发)。#心脏病有269,769条帖子(13%为转发)。社交媒体上关于#乳腺癌和#心脏病的讨论关注女性、新进展、求助呼吁和疾病风险。#乳腺癌语料库包含性别化语言以及与艺术和行动主义的关联,而关于#心脏病的帖子则与其他疾病一起进行科学讨论。#乳腺癌语料库独特地包含特定社区的首字母缩写标签。对#乳腺癌语料库的立场分析显示,更多以社会为导向的帖子,其特点是建设性推理、包容性语言和抽象思维的语言,而#心脏病语料库的帖子更具学术性,使用偶然和对立推理、来自机构和学术语域的语言、引用和元话语。
#心脏病社交媒体社区的参与度较低,其内容与疾病和个人经历的针对性不如#乳腺癌。培养一个以女性为中心的心脏病在线社区可能会复制#乳腺癌社区的一些成功经验。