Reb Anne M, Cope Diane G
City of Hope, Duarte, CA, USA.
Florida Cancer Specialists & Research Institute, Fort Myers, USA.
West J Nurs Res. 2019 Oct;41(10):1385-1406. doi: 10.1177/0193945919846901. Epub 2019 May 12.
Gynecologic cancer survivors experience significant distress that can impact quality of life (QOL). Optimal survivorship care requires an understanding of the survivor's QOL and supportive care needs. The purpose of this study was to describe the QOL and needs of gynecologic cancer survivors. Women with an initial diagnosis of gynecologic cancer within 7 months of completing primary treatment ( = 34) completed the QOL-Cancer Survivor tool and the Cancer Survivors' Unmet Needs Survey. Fear of cancer recurrence was a repetitive theme for both tools. The lowest ranking QOL items were distress from diagnosis and treatment, family distress, and uncertainty about the future. Commonly reported needs included help to reduce stress, manage side effects, cope with fears of cancer recurrence, and gain reassurance that providers were communicating, and providing the very best medical care. Appreciating QOL and needs can facilitate the development of support services specifically tailored to gynecologic survivors.
妇科癌症幸存者经历着会影响生活质量（QOL）的重大痛苦。最佳的生存护理需要了解幸存者的生活质量和支持性护理需求。本研究的目的是描述妇科癌症幸存者的生活质量和需求。在完成初次治疗后7个月内首次诊断为妇科癌症的女性（n = 34）完成了生活质量-癌症幸存者工具和癌症幸存者未满足需求调查。对癌症复发的恐惧是这两种工具中反复出现的主题。生活质量得分最低的项目是诊断和治疗带来的痛苦、家庭痛苦以及对未来的不确定性。常见的需求包括帮助减轻压力、管理副作用、应对对癌症复发的恐惧，以及获得提供者正在沟通并提供最佳医疗护理的保证。了解生活质量和需求有助于开发专门为妇科癌症幸存者量身定制的支持服务。
