Suppr超能文献

照顾者对痴呆症患者“生活得好”的影响:来自 IDEAL 研究的发现。

Caregiver influences on 'living well' for people with dementia: Findings from the IDEAL study.

机构信息

Centre of Applied Dementia Studies, University of Bradford, Bradford, UK.

REACH: The Centre for Research in Ageing and Cognitive Health, University of Exeter Medical School and College of Life and Environmental Sciences, Exeter, UK.

出版信息

Aging Ment Health. 2020 Sep;24(9):1505-1513. doi: 10.1080/13607863.2019.1602590. Epub 2019 May 19.

Abstract

The capability to 'live well' in people with dementia can be influenced by many factors, including those related to the experiences of their informal caregiver. How caregivers experience their own role can affect not only their well-being but also the way they provide care and hence the experience of the person with dementia. The aim of this study is to identify the potential impact of the caregiver's perception of the caregiving experience on how people with mild to moderate dementia self-rate their QoL, well-being and satisfaction with life. This study utilised time-point 1 data from 1283 informal caregiver and the 1283 people with dementia whom they provide care from the IDEAL cohort study. Multivariate modelling was used to investigate the associations between measures related to the caregiver's perception of the caregiving experience (caregiving stress, perceived social restrictions, caregiving competence, positive aspects of caregiving, and coping) and the self-ratings of QoL, satisfaction with life, and well-being by the person with dementia. Lower QoL ratings by the person with dementia were associated with high caregiver stress (-1.98; 95% CI: -2.89, -1.07), high perceived social restrictions (-2.04; 95% CI: -2.94, -1.14) and low caregiving competence (-2.01; 95% CI: -2.95, -1.06). Similar associations were found for satisfaction with life and wellbeing. Positive aspects of caregiving and coping were not associated with outcomes for the person with dementia. The findings indicate that how the caregiver experiences caregiving can affect the person with dementia. This finding reinforces the importance of providing support to caregivers.

摘要

在痴呆症患者中,“生活得好”的能力可能受到许多因素的影响,包括与他们的非专业照顾者的经历相关的因素。照顾者如何体验自己的角色不仅会影响他们的幸福感,还会影响他们提供护理的方式,从而影响到痴呆症患者的体验。本研究的目的是确定照顾者对护理体验的感知对轻度至中度痴呆症患者自我评估其生活质量、幸福感和生活满意度的潜在影响。本研究利用了来自 IDEAL 队列研究的 1283 名非专业照顾者和他们所照顾的 1283 名轻度至中度痴呆症患者的时间点 1 数据。采用多变量模型来研究与照顾者对护理体验的感知(照顾压力、感知社会限制、照顾能力、照顾的积极方面和应对方式)相关的措施与痴呆症患者自我评估的生活质量、生活满意度和幸福感之间的关联。痴呆症患者的生活质量评分较低与照顾者压力较大(-1.98;95%置信区间:-2.89,-1.07)、感知社会限制较大(-2.04;95%置信区间:-2.94,-1.14)和照顾能力较低(-2.01;95%置信区间:-2.95,-1.06)相关。对于生活满意度和幸福感也有类似的关联。照顾的积极方面和应对方式与痴呆症患者的结果无关。这些发现表明,照顾者对护理的体验会影响到痴呆症患者。这一发现强调了为照顾者提供支持的重要性。

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验