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1
Familial genetic risks: how can we better navigate patient confidentiality and appropriate risk disclosure to relatives?
J Med Ethics. 2019 Aug;45(8):504-507. doi: 10.1136/medethics-2018-105229. Epub 2019 May 23.
2
Confidentiality in medicine: how far should doctors prioritise the confidentiality of the individual they are treating?
Postgrad Med J. 2018 Oct;94(1116):596-600. doi: 10.1136/postgradmedj-2018-136038. Epub 2018 Nov 13.
3
The Double Helix: Applying an Ethic of Care to the Duty to Warn Genetic Relatives of Genetic Information.
Bioethics. 2016 Mar;30(3):181-7. doi: 10.1111/bioe.12176. Epub 2015 Jul 21.
8
Genetic secrets and the family.
Med Law Rev. 2001 Summer;9(2):130-61. doi: 10.1093/medlaw/9.2.130.
9
Genetic secrets and the family: a response to Bell and Bennett.
Med Law Rev. 2001 Summer;9(2):162-9. doi: 10.1093/medlaw/9.2.162.
10
Professional confidentiality.
Stud Christ Ethics. 1989;2(1):46-60. doi: 10.1177/095394688900200106.

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2
Development of a digital risk-prediction tool based on family health history for the general population: legal and ethical implications.
J Community Genet. 2025 Feb;16(1):73-81. doi: 10.1007/s12687-024-00761-4. Epub 2024 Dec 14.
5
The experience of receiving a letter from a cancer genetics clinic about risk for hereditary cancer.
Eur J Hum Genet. 2024 May;32(5):539-544. doi: 10.1038/s41431-024-01551-9. Epub 2024 Feb 14.
6
Dealing with ambivalence in the practice of advanced genetic healthcare: towards an ethical choreography.
Eur J Hum Genet. 2023 Dec;31(12):1387-1392. doi: 10.1038/s41431-023-01436-3. Epub 2023 Aug 18.
7
To use or not to use? an ethical analysis of access to data and samples of a deceased patient for genetic diagnostic and research purposes.
J Med Ethics Hist Med. 2022 Dec 28;15:13. doi: 10.18502/jmehm.v15i13.11569. eCollection 2022.
8
Immortal data: a qualitative exploration of patients' understandings of genomic data.
Eur J Hum Genet. 2023 Jun;31(6):681-686. doi: 10.1038/s41431-023-01325-9. Epub 2023 Mar 31.
9
"If relatives inherited the gene, they should inherit the data." Bringing the family into the room where bioethics happens.
New Genet Soc. 2022;41(1):23-46. doi: 10.1080/14636778.2021.2007065. Epub 2021 Dec 13.
10
Re-imagining 'the patient': Linked lives and lessons from genomic medicine.
Soc Sci Med. 2022 Mar;297:114806. doi: 10.1016/j.socscimed.2022.114806. Epub 2022 Feb 12.

本文引用的文献

1
Reasonable expectations of privacy in non-disclosure of familial genetic risk: What is it reasonable to expect?
Eur J Med Genet. 2019 May;62(5):308-315. doi: 10.1016/j.ejmg.2018.11.013. Epub 2018 Dec 4.
3
Using a genetic test result in the care of family members: how does the duty of confidentiality apply?
Eur J Hum Genet. 2018 Jul;26(7):955-959. doi: 10.1038/s41431-018-0138-y. Epub 2018 Apr 27.
4
Alerting relatives about heritable risks: the limits of confidentiality.
BMJ. 2018 Apr 5;361:k1409. doi: 10.1136/bmj.k1409.
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Reconsidering the duty to warn genetically at-risk relatives.
Genet Med. 2018 Mar;20(3):285-290. doi: 10.1038/gim.2017.257. Epub 2018 Feb 1.
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Non-disclosure of genetic risks: The case for developing legal wrongs.
Med Law Int. 2016 Mar;16(1-2):3-26. doi: 10.1177/0968533216653440. Epub 2016 Jun 9.
8
Recognizing the Right Not to Know: Conceptual, Professional, and Legal Implications.
J Law Med Ethics. 2014 Spring;42(1):53-63. doi: 10.1111/jlme.12118.
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Genetic information: a joint account?
BMJ. 2004 Jul 17;329(7458):165-7. doi: 10.1136/bmj.329.7458.165.

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