基因组数据的可识别性与 GDPR：根据欧盟通用数据保护条例评估基因组数据的可识别性。
Re-identifiability of genomic data and the GDPR: Assessing the re-identifiability of genomic data in light of the EU General Data Protection Regulation.
机构信息
Department of Public Health and Primary Care, Center for Biomedical Ethics and Law, University of Leuven, Leuven, Belgium.
Life Sciences & Society Lab, Centre for Sociological Research, University of Leuven, Leuven, Belgium.
出版信息
EMBO Rep. 2019 Jun;20(6). doi: 10.15252/embr.201948316. Epub 2019 May 24.
Abstract
The EU Data Protection Regulation has wide‐ranging implications for research based on anonymized personal genomic and genetic data given the realistic risk of re‐identification. [Image: see text]
摘要
欧盟数据保护条例广泛适用于基于匿名个人基因组和遗传数据的研究，因为存在重新识别的现实风险。[图片：见正文]
相似文献
1
Re-identifiability of genomic data and the GDPR: Assessing the re-identifiability of genomic data in light of the EU General Data Protection Regulation.基因组数据的可识别性与 GDPR：根据欧盟通用数据保护条例评估基因组数据的可识别性。
EMBO Rep. 2019 Jun;20(6). doi: 10.15252/embr.201948316. Epub 2019 May 24.
2
[Protecting the rights and freedoms of individuals with regard to health data processing: the risk approach of the EU General Data Protection Regulation (GDPR)].[保护个人在健康数据处理方面的权利和自由：欧盟《通用数据保护条例》（GDPR）的风险处理方法]
Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2023 Feb;66(2):143-153. doi: 10.1007/s00103-022-03652-6. Epub 2023 Jan 17.
3
International data-sharing norms: from the OECD to the General Data Protection Regulation (GDPR).国际数据共享规范：从经合组织到通用数据保护条例（GDPR）。
Hum Genet. 2018 Aug;137(8):575-582. doi: 10.1007/s00439-018-1919-7. Epub 2018 Aug 1.
4
Patients v. Myriad or the GDPR Access Right v. the EU Database Right.患者诉迈锐德案，或 GDPR 信息查阅权诉欧盟数据库权利。
Eur J Hum Genet. 2019 Feb;27(2):211-215. doi: 10.1038/s41431-018-0258-4. Epub 2018 Sep 27.
5
General Data Protection Regulation (GDPR) in Healthcare: Hot Topics and Research Fronts.医疗保健领域的《通用数据保护条例》（GDPR）：热点话题与研究前沿。
Stud Health Technol Inform. 2020 Jun 16;270:1118-1122. doi: 10.3233/SHTI200336.
6
Assessment of the Dutch Rules on Health Data in the Light of the GDPR.评估 GDPR 对荷兰健康数据规则的影响。
Eur J Health Law. 2022 Oct 19;30(3):322-344. doi: 10.1163/15718093-bja10096.
7
Germany: a fair balance between scientific freedom and data subjects' rights?德国：科学自由和数据主体权利之间的公平平衡？
Hum Genet. 2018 Aug;137(8):619-626. doi: 10.1007/s00439-018-1912-1. Epub 2018 Aug 16.
8
Why and how we should care about the General Data Protection Regulation.我们为什么要关心通用数据保护条例以及如何去关心。
Psychol Health. 2019 Nov;34(11):1347-1357. doi: 10.1080/08870446.2019.1606222. Epub 2019 May 21.
9
Observational health research in Europe: understanding the General Data Protection Regulation and underlying debate.欧洲的观察性健康研究：理解《通用数据保护条例》和背后的争论。
Eur J Cancer. 2018 Nov;104:70-80. doi: 10.1016/j.ejca.2018.09.032. Epub 2018 Oct 15.
10
openEHR Based Systems and the General Data Protection Regulation (GDPR).基于开放电子健康记录（openEHR）的系统与通用数据保护条例（GDPR）。
Stud Health Technol Inform. 2018;247:91-95.
引用本文的文献
1
Generating realistic artificial human genomes using adversarial autoencoders.使用对抗自编码器生成逼真的人工人类基因组。
NAR Genom Bioinform. 2025 Jul 24;7(3):lqaf101. doi: 10.1093/nargab/lqaf101. eCollection 2025 Sep.
2
Perceptual and technical barriers in sharing and formatting metadata accompanying omics studies.组学研究中伴随元数据的共享与格式化方面的感知和技术障碍。
Cell Genom. 2025 May 14;5(5):100845. doi: 10.1016/j.xgen.2025.100845. Epub 2025 Apr 10.
3
Proxy panels enable privacy-aware outsourcing of genotype imputation.代理面板实现了基因型填充的隐私保护外包。
Genome Res. 2025 Feb 14;35(2):326-339. doi: 10.1101/gr.278934.124.
4
Data sharing in circadian rhythm and mental health research: current status, challenges, recommendations and future directions.昼夜节律与心理健康研究中的数据共享：现状、挑战、建议及未来方向
BMJ Ment Health. 2024 Dec 22;27(1):e301333. doi: 10.1136/bmjment-2024-301333.
5
Can Open Science Advance Health Justice? Genomic Research Dissemination in the Evolving Data-Sharing Landscape.开放科学能否推动健康公平？不断演变的数据共享格局下的基因组研究传播
Hastings Cent Rep. 2024 Dec;54 Suppl 2:S73-S83. doi: 10.1002/hast.4932.
6
Pangenome-Informed Language Models for Privacy-Preserving Synthetic Genome Sequence Generation.用于隐私保护合成基因组序列生成的全基因组信息语言模型
bioRxiv. 2024 Sep 24:2024.09.18.612131. doi: 10.1101/2024.09.18.612131.
7
FedGMMAT: Federated generalized linear mixed model association tests.FedGMMAT：联邦广义线性混合模型关联测试。
PLoS Comput Biol. 2024 Jul 24;20(7):e1012142. doi: 10.1371/journal.pcbi.1012142. eCollection 2024 Jul.
8
Assessing Privacy Vulnerabilities in Genetic Data Sets: Scoping Review.评估基因数据集的隐私漏洞：范围综述
JMIR Bioinform Biotechnol. 2024 May 27;5:e54332. doi: 10.2196/54332.
9
Ten simple rules for computational biologists collaborating with wet lab researchers.计算生物学家与湿实验研究人员合作的十个简单规则。
PLoS Comput Biol. 2024 Jun 20;20(6):e1012174. doi: 10.1371/journal.pcbi.1012174. eCollection 2024 Jun.
10
Legal aspects of privacy-enhancing technologies in genome-wide association studies and their impact on performance and feasibility.全基因组关联研究中隐私增强技术的法律问题及其对性能和可行性的影响。
Genome Biol. 2024 Jun 13;25(1):154. doi: 10.1186/s13059-024-03296-6.
本文引用的文献
1
Scrutinizing the EU General Data Protection Regulation.审视欧盟《通用数据保护条例》。
Science. 2018 May 4;360(6388):496-498. doi: 10.1126/science.aar5419.
2
Rules for processing genetic data for research purposes in view of the new EU General Data Protection Regulation.为了符合新的欧盟一般数据保护条例，在研究目的下处理基因数据的规则。
Eur J Hum Genet. 2018 Feb;26(2):149-156. doi: 10.1038/s41431-017-0045-7. Epub 2017 Nov 29.
3
From the principles of genomic data sharing to the practices of data access committees.从基因组数据共享的原则到数据访问委员会的实践。
EMBO Mol Med. 2015 May;7(5):507-9. doi: 10.15252/emmm.201405002.
4
Routes for breaching and protecting genetic privacy.突破和保护遗传隐私的途径。
Nat Rev Genet. 2014 Jun;15(6):409-21. doi: 10.1038/nrg3723. Epub 2014 May 8.
5
Genomics and privacy: implications of the new reality of closed data for the field.基因组学与隐私：封闭数据的新现实对该领域的影响。
PLoS Comput Biol. 2011 Dec;7(12):e1002278. doi: 10.1371/journal.pcbi.1002278. Epub 2011 Dec 1.
6
Methods for the de-identification of electronic health records for genomic research.用于基因组研究的电子健康记录去识别方法。
Genome Med. 2011 Apr 27;3(4):25. doi: 10.1186/gm239.
7
Public access to genome-wide data: five views on balancing research with privacy and protection.公众对全基因组数据的访问：关于平衡研究与隐私及保护的五种观点。
PLoS Genet. 2009 Oct;5(10):e1000665. doi: 10.1371/journal.pgen.1000665. Epub 2009 Oct 2.
Zotero 插件