Ni P W, Mao B Q, Yang Y, Li J J, Liu H, Huang Y, Xie T
Department of Emergency, Ninth People's Hospital Affiliated to Shanghai Jiao Tong University School of Medicine, Shanghai 200011, China.
Nursing Department, Ninth People's Hospital Affiliated to Shanghai Jiao Tong University School of Medicine, Shanghai 200011, China.
Zhonghua Shao Shang Za Zhi. 2019 May 20;35(5):379-383. doi: 10.3760/cma.j.issn.1009-2587.2019.05.010.
To investigate the current status of uncertainty in illness and caregiving burden in family members of patients with chronic wounds, and to analyze the relationship between them. A total of 180 patients with chronic wounds admitted to the Department of Emergency of our hospital from October 2017 to March 2018, conforming to the study criteria, were selected by adopting the convenience sampling method. Then one family member who took care of the patients for the longest time and conformed to the study criteria were included in this cross-sectional survey. General Information Questionnaire made by the authors was conducted to investigate the demographic data and wounds of patients, and demographic data of family members. Chinese version of Parent Perception of Uncertainty Scale-Family Member (PPUS-FM) and Caregiver Burden Inventory (CBI) were used to investigate the uncertainty in illness and caregiving burden. Data were processed with multiple linear regression analysis and partial correlation analysis. The effective recovery rate of questionnaire was 91.7% (165/180). (1) The ages of patients were (71±17) years. Among them, there were 89 males and 76 females. The course of chronic wounds was 0.5 to 120.0 months. The wounds were mainly primary occurrence (86.1%, 142 patients), and the main type of wound was pressure ulcer (43.6%, 72 patients). Fifty-seven patients (34.5%) had wound infection. The ages of family members were (56±13) years, and 61.8% (102 people) of them were female. Their daily time of taking care of patients was (10±8) h. (2) The total scores of PPUS-FM of family members were 33 to 125 (88±17) points, mainly in medium level, in which the item score of unpredictability dimension was the highest. (3) The total scores of CBI of family members were 7 to 79 (43±14) points, in which the item score of time-dependence burden dimension was the highest. (4) Uncertainty in PPUS-FM could independently influence 10% of the total variation of caregiving burden in family members of patients (=3.18, <0.01). (5) The total scores of PPUS-FM of family members were in significantly positive correlation with the total scores of CBI and scores of physical burden, emotional burden, and social burden, respectively (=0.33, 0.32, 0.25, 0.36, <0.05 or <0.01), while there was no obvious correlation between total scores of PPUS-FM of family members and time-dependence burden/developmental burden (=0.14, 0.16, >0.05). There is positive correlation between uncertainty in illness and caregiving burden.
调查慢性伤口患者家庭成员的疾病不确定感及照顾负担现状，并分析两者之间的关系。采用便利抽样法，选取2017年10月至2018年3月在我院急诊科住院的180例符合研究标准的慢性伤口患者。然后选取一位照顾患者时间最长且符合研究标准的家庭成员纳入本次横断面调查。采用自行编制的一般资料问卷调查患者的人口学资料、伤口情况以及家庭成员的人口学资料。采用中文版的患者家属疾病不确定感量表（PPUS-FM）和照顾者负担量表（CBI）调查疾病不确定感和照顾负担。数据采用多重线性回归分析和偏相关分析进行处理。问卷有效回收率为91.7%（165/180）。（1）患者年龄为（71±17）岁。其中男性89例，女性76例。慢性伤口病程为0.5至120.0个月。伤口主要为初发（86.1%，142例），主要伤口类型为压疮（43.6%，72例）。57例（34.5%）患者发生伤口感染。家庭成员年龄为（56±13）岁，其中女性占61.8%（102人）。他们每天照顾患者的时间为（10±8）小时。（2）家庭成员PPUS-FM总分在33至125分之间（88±17）分，主要处于中等水平，其中不可预测性维度的项目得分最高。（3）家庭成员CBI总分在7至79分之间（43±14）分，其中时间依赖性负担维度的项目得分最高。（4）PPUS-FM中的不确定感可独立影响患者家庭成员照顾负担总变异的10%（=3.18，<0.01）。（5）家庭成员PPUS-FM总分与CBI总分以及身体负担、情感负担和社会负担得分分别呈显著正相关（=0.33、0.32、0.25、0.36，<0.05或<0.01），而家庭成员PPUS-FM总分与时间依赖性负担/发展性负担之间无明显相关性（=0.14、0.16，>0.05）。疾病不确定感与照顾负担之间存在正相关。
