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一项微开关干预措施对六名雷特综合征女孩决策能力及活动参与度改善效果的实验性检验与社会验证

Experimental Examination and Social Validation of a Microswitch Intervention to Improve Choice-Making and Activity Engagement for Six Girls with Rett Syndrome.

作者信息

Stasolla Fabrizio, Caffò Alessandro Oronzo, Perilli Viviana, Albano Vincenza

机构信息

University Giustino Fortunato of Benevento , Italy.

Department of Educational Sciences, Psychology, Communication, University of Bari , Italy.

出版信息

Dev Neurorehabil. 2019 Nov;22(8):527-541. doi: 10.1080/17518423.2019.1624655. Epub 2019 Jun 6.

Abstract

: The use of assistive technology, specifically microswitches, with children with RTT has been shown to effectively moderate the impact of their disability on their quality of life by facilitating access to meaningful leisure and other activities. : This study aimed to evaluate the effectiveness of a microswitch intervention on increased choice making, engagement in a targeted sorting activity, and indices of happiness, and decreased stereotypic behaviors for six girls with Rett syndrome. Targeted dependent variables were also assessed at six months post-intervention. Following the intervention study, 90 external raters completed a social validation procedure. : An ABABAB experimental sequence was implemented for each participant with a cross-over effect. A social validation assessment involving 90 external raters was carried out. : Data emphasized an improved performance for each participants involved (i.e., adaptive responses). Five participants showed a capacity of independent choice. One participant seemed to be closely linked to the position of the container. Social raters favorably endorsed the use of the program since they positively evaluated the use of the technology on all the dimensions investigated. : A microswitch intervention may improve choice making and activity engagement for children with Rett syndrome. Further research is needed on the development of more sophisticated forms of individualized technological options to improve opportunities for enhanced engagement and choice-making for individuals with RTT.

摘要

:已证明,对患有雷特综合征(RTT)的儿童使用辅助技术,特别是微动开关,通过促进他们参与有意义的休闲和其他活动,能有效减轻其残疾对生活质量的影响。:本研究旨在评估微动开关干预对六名雷特综合征女孩增加选择能力、参与目标分类活动、提高幸福感指数以及减少刻板行为的有效性。在干预后六个月还对目标因变量进行了评估。干预研究结束后,90名外部评估者完成了社会效度程序。:对每位参与者实施ABABAB实验序列,具有交叉效应。进行了一项涉及90名外部评估者的社会效度评估。:数据强调了每位参与的参与者表现有所改善(即适应性反应)。五名参与者表现出独立选择的能力。一名参与者似乎与容器的位置密切相关。社会评估者对该程序的使用给予了积极认可,因为他们对该技术在所有调查维度上的使用都给予了积极评价。:微动开关干预可能会改善雷特综合征儿童的选择能力和活动参与度。需要进一步研究开发更复杂的个性化技术选项形式,以改善雷特综合征患者增强参与度和选择能力的机会。

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