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支持三名雷特综合征女孩选择策略的技术辅助手段。

Technological aids to support choice strategies by three girls with Rett syndrome.

作者信息

Stasolla Fabrizio, Perilli Viviana, Di Leone Antonia, Damiani Rita, Albano Vincenza, Stella Anna, Damato Concetta

机构信息

Lega del Filo d'Oro Research Center, Molfetta, Italy.

Lega del Filo d'Oro Research Center, Lesmo, Italy.

出版信息

Res Dev Disabil. 2015 Jan;36:36-44. doi: 10.1016/j.ridd.2014.09.017. Epub 2014 Oct 11.

DOI:10.1016/j.ridd.2014.09.017
PMID:25310833
Abstract

This study was aimed at extending the use of assistive technology (i.e., photocells, interface and personal computer) to support choice strategies by three girls with Rett syndrome and severe to profound developmental disabilities. A second purpose of the study was to reduce stereotypic behaviors exhibited by the participants involved (i.e., body rocking, hand washing and hand mouthing). Finally, a third goal of the study was to monitor the effects of such program on the participants' indices of happiness. The study was carried out according to a multiple probe design across responses for each participant. Results showed that the three girls increased the adaptive responses and decreased the stereotyped behaviors during intervention phases compared to baseline. Moreover, during intervention phases, the indices of happiness augmented for each girl as well. Clinical, psychological and rehabilitative implications of the findings are discussed.

摘要

本研究旨在扩展辅助技术(即光电管、接口和个人计算机)的应用,以支持三名患有雷特综合征且有严重至极重度发育障碍的女孩的选择策略。该研究的第二个目的是减少相关参与者表现出的刻板行为(即身体摇晃、洗手和吮手)。最后,该研究的第三个目标是监测此类项目对参与者幸福指数的影响。该研究针对每个参与者的反应,根据多重探测设计进行。结果表明,与基线相比,这三名女孩在干预阶段增加了适应性反应,减少了刻板行为。此外,在干预阶段,每个女孩的幸福指数也有所提高。本文讨论了这些发现的临床、心理和康复意义。

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