Molinari Emanuela, Pizer Barry, Catsman-Berrevoets Coriene, Avula Shivaram, Keating Robert, Paquier Philippe, Wisoff Jeffrey H, Walsh Karin S
Department of Neurology, The Queen Elizabeth University Hospital, Glasgow, UK.
College of Medical Veterinary & Life Sciences, School of Medicine, Dentistry & Nursing, University of Glasgow, Glasgow, UK.
Childs Nerv Syst. 2020 Jun;36(6):1145-1151. doi: 10.1007/s00381-019-04220-1. Epub 2019 Jun 8.
The Posterior Fossa Society (PFS) was founded 4 years ago to systematically gather and exchange information on the post-operative (CMS) and cerebellar cognitive affective syndrome (CCAS). With its consensus meetings, the PFS orchestrates research studies in the field of cerebellar injury and progresses the knowledge of post-operative pediatric cerebellar mutism syndrome (CMS). In this article, we captured the 3-day program of presentations, group discussions, interactive workshops, and dialogue, highlighting the key topic areas of CMS and its research advances.
This synopsis is based on the third consensus meeting which was held in Reykjavik, Iceland, in August 2018.
Three working groups have been defined to drive the future research priorities on post-surgical CMS: (i) refining definition and symptoms scoring of CMS; (ii) understanding the pathogenesis and enhancing risk-stratification strategies; and (iii) developing rehabilitation approaches and protocols.
The third consensus meeting highlighted a unanimous desire for data-driven information to advance the knowledge and guide future research efforts. The PFS constitutes an established and expanding network of multi-disciplinary expertise that can facilitate the development of collaborative studies and produce official guidelines on the topic.
后颅窝协会(PFS)于4年前成立,旨在系统收集和交流关于术后(CMS)及小脑认知情感综合征(CCAS)的信息。通过其共识会议,PFS精心组织小脑损伤领域的研究,并推动对小儿术后小脑缄默综合征(CMS)的认识。在本文中,我们记录了为期3天的演讲、小组讨论、互动工作坊及对话活动,突出了CMS的关键主题领域及其研究进展。
本概述基于2018年8月在冰岛雷克雅未克举行的第三次共识会议。
已确定三个工作组来推动术后CMS未来的研究重点:(i)完善CMS的定义和症状评分;(ii)了解发病机制并加强风险分层策略;(iii)制定康复方法和方案。
第三次共识会议凸显了对数据驱动信息的一致需求,以增进知识并指导未来的研究工作。PFS构成了一个既定且不断扩大的多学科专业网络,能够促进合作研究的开展,并就该主题制定官方指南。