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睾丸癌患者的照料者情感负担:从患者到照料者支持

Caregiver Emotional Burden in Testicular Cancer Patients: From Patient to Caregiver Support.

作者信息

De Padova Silvia, Casadei Chiara, Berardi Alejandra, Bertelli Tatiana, Filograna Alessia, Cursano Maria Concetta, Menna Cecilia, Burgio Salvatore Luca, Altavilla Amelia, Schepisi Giuseppe, Prati Sabrina, Montalti Sandra, Chovanec Michal, Banna Giuseppe Luigi, Grassi Luigi, Mego Michal, De Giorgi Ugo

机构信息

Psycho-Oncology Unit, Istituto Scientifico Romagnolo per lo Studio e la Cura dei Tumori (IRST), IRCCS, Meldola, Italy.

Medical Oncology Department, Istituto Scientifico Romagnolo per lo Studio e la Cura dei Tumori (IRST), IRCCS, Meldola, Italy.

出版信息

Front Endocrinol (Lausanne). 2019 May 28;10:318. doi: 10.3389/fendo.2019.00318. eCollection 2019.

Abstract

Testicular cancer is the most common tumor in young males aged 15-40 years. The overall cure rate for men with testicular cancer is >90%, so a huge number of these patients will become testicular cancer survivors. These people may feel some stress in the experience of diagnosis, treatment, and consequences that affects the quality of life, and during follow-up, especially when new issues and emotional distresses appear over time, such as late side-effects of treatments and emotional challenges including fear of tumor relapse, fertility and sexuality concerns, and social and workplace issues. The cancer experience has an impact not only on patients, but also on their relatives (e.g., spouses, parents, or siblings), who often have to assume a caregiving role for the duration of and following treatment for cancer. Moreover, the caregiver plays an important role in supporting a man with a testicular cancer, providing physical and emotional care. This review presents a summary of existing knowledge regarding the impact and the burden of testicular cancer on caregivers.

摘要

睾丸癌是15至40岁年轻男性中最常见的肿瘤。睾丸癌男性患者的总体治愈率超过90%,因此大量此类患者将成为睾丸癌幸存者。这些人在诊断、治疗及相关后果的经历中可能会感到一些压力,这些压力会影响生活质量,在随访期间尤其如此,特别是随着时间推移出现新问题和情绪困扰时,比如治疗的晚期副作用以及包括对肿瘤复发的恐惧、生育和性方面的担忧,还有社会和工作场所问题等情绪挑战。患癌经历不仅会影响患者,还会影响他们的亲属(如配偶、父母或兄弟姐妹),这些亲属通常在癌症治疗期间及之后不得不承担照顾者的角色。此外,照顾者在支持睾丸癌男性患者方面发挥着重要作用,提供身体和情感护理。本综述总结了关于睾丸癌对照顾者的影响和负担的现有知识。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/124d/6546807/dfcb96c7524c/fendo-10-00318-g0001.jpg

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