Kim Hyejin, Yi Myungsun
Department of Nursing, Seoul National University Hospital, Seoul National University, Seoul, South Korea.
College of Nursing and Research Institute of Nursing Science, Seoul National University, Seoul, South Korea.
Asia Pac J Oncol Nurs. 2015 Jul-Sep;2(3):152-159. doi: 10.4103/2347-5625.158019.
The purpose of this study was to investigate the levels of unmet needs and quality of life (QOL) among family caregivers (FCs) of cancer patients and to characterize the relationship between unmet needs and QOL.
A descriptive correlation design was used. Data were collected by convenience sampling during 2013 from 191 FCs of cancer patients who visited an outpatient cancer center in a general hospital in Korea. The comprehensive needs assessment tool for cancer-caregivers and the Korean version of the Caregiver QOL Index-Cancer were used to measure unmet needs and QOL, respectively.
FCs of cancer patients had a variety of unmet needs with prevalence ranged from 57.0% to 88.9%, depending on the domain. The domain with the highest prevalence of unmet needs was healthcare staff, followed by information/education. The mean QOL score was 74.62, with a possible range of 0-140. A negative correlation was found between unmet needs and QOL. Stepwise multiple regression analysis showed that unmet needs relating to health/psychological problems, practical support, family/social support, in addition to household income, cohabitation with the patient, and patient's age, explained 52.7% of the variance in QOL. The most influential factor was unmet needs relating to health/psychological problems, which accounted for 35.7% of the variance.
The results of this study indicate that oncology professionals need to develop interventions to improve the QOL of FCs by focusing not only on information/educational needs of patient care but also on physical and psychological needs of FCs.
本研究旨在调查癌症患者家庭照顾者(FCs)未满足需求的水平及生活质量(QOL),并描述未满足需求与生活质量之间的关系。
采用描述性相关性设计。2013年期间,通过便利抽样从韩国一家综合医院门诊癌症中心就诊的191名癌症患者的家庭照顾者中收集数据。分别使用癌症照顾者综合需求评估工具和韩文版照顾者生活质量指数-癌症来测量未满足需求和生活质量。
癌症患者的家庭照顾者存在各种未满足需求,患病率在57.0%至88.9%之间,具体取决于领域。未满足需求患病率最高的领域是医护人员,其次是信息/教育。生活质量平均得分为74.62,可能范围为0至140。未满足需求与生活质量之间存在负相关。逐步多元回归分析表明,除家庭收入、与患者同居以及患者年龄外,与健康/心理问题、实际支持、家庭/社会支持相关的未满足需求解释了生活质量方差的52.7%。最具影响力的因素是与健康/心理问题相关的未满足需求,占方差的35.7%。
本研究结果表明,肿瘤学专业人员需要制定干预措施,不仅要关注患者护理的信息/教育需求,还要关注家庭照顾者的身体和心理需求,以提高他们的生活质量。