Clinical Hospital of the Federal University of Triângulo Mineiro (UFTM), Uberaba, Minas Gerais, Brazil; Health-Related Quality of Life Research Group (GPQual), Learning and Research Institute, Barretos Cancer Hospital, Barretos, São Paulo, Brazil.
Health-Related Quality of Life Research Group (GPQual), Learning and Research Institute, Barretos Cancer Hospital, Barretos, São Paulo, Brazil.
J Pain Symptom Manage. 2019 Sep;58(3):417-426.e4. doi: 10.1016/j.jpainsymman.2019.05.023. Epub 2019 Jun 11.
After cancer diagnosis, personal value priorities may change in a way that would transform such values and how life is perceived by cancer patients and their caregivers, including happiness and its pursuit.
The objective of the study was to analyze and compare what cancer patients, informal caregivers, and healthy population believe that would make them happy.
A qualitative content analysis was performed on the responses to a single question: "What is missing for you to be happy?" Narratives of cancer patients (n = 242, face-to-face interview), informal caregivers (n = 125, face-to-face interview), and healthy participants (n = 1,671, recruited through social media, online survey) were analyzed. Word clouds were created for each group of participants. Contents were identified and frequencies were compared among participants by means of chi-square and Fisher's exact tests.
Overall, participants were pursuing better health (n = 288, 14.1%), better interpersonal relationships (n = 456, 22.4%), money (n = 412, 20.2%), and work-related aspects (n = 481, 23.6%). Cancer patients and informal caregivers sought better health and cure more often than when compared to healthy people (P < 0.001). Among cancer patients, survivors' profile tended to be similar to that of the healthy population concerning what they need to be happy. Unexpectedly, "cure" (22.7%) was more frequent among participants with incurable cancer.
Regardless of the group they were in, participants sought happiness in what they considered to be important to their lives, but it was something they did not have at the time of the interview. Psychoeducational and cognitive-behavioral strategies focused on how to deal with life expectations among people facing cancer are awaited.
癌症诊断后,个人价值观可能会发生变化,从而改变癌症患者及其护理人员对价值观的看法,包括对幸福及其追求的看法。
本研究旨在分析和比较癌症患者、非正式护理者和健康人群认为哪些因素会使他们感到幸福。
对癌症患者(n=242,面对面访谈)、非正式护理者(n=125,面对面访谈)和健康参与者(n=1671,通过社交媒体、在线调查招募)对一个问题的回答进行了定性内容分析:“为了让你感到幸福,你缺少什么?”为每个组别的参与者创建了词云。通过卡方检验和 Fisher 确切检验,确定内容并比较参与者之间的频率。
总的来说,参与者追求更好的健康(n=288,14.1%)、更好的人际关系(n=456,22.4%)、金钱(n=412,20.2%)和工作相关方面(n=481,23.6%)。与健康人群相比,癌症患者和非正式护理者更经常寻求更好的健康和治愈(P<0.001)。在癌症患者中,幸存者的情况与健康人群相似,他们需要幸福。出乎意料的是,“治愈”(22.7%)在患有不可治愈癌症的参与者中更为常见。
无论他们属于哪个群体,参与者都在他们认为对生活重要的事情中寻求幸福,但在接受采访时,他们并没有拥有这些东西。人们期待着针对面临癌症的人群,提供关于如何应对生活期望的心理教育和认知行为策略。