Baur Nicole, Centeno Carlos, Garralda Eduardo, Connor Stephen, Clark David
School of Interdisciplinary Studies, University of Glasgow, Dumfries Campus, Dumfries, DG1 4ZL, UK.
Institute for Culture and Society, Health Research Institute of Navarra (IDISNA), University of Navarra, Pamplona, 31009, Spain.
Wellcome Open Res. 2019 Aug 16;4:77. doi: 10.12688/wellcomeopenres.15109.2. eCollection 2019.
: Despite growing interest from policy makers, researchers and activists, there is still little science to underpin the global development of palliative care. This study presents the methods deployed in the creation of a 'world map' of palliative care development. Building on two previous iterations, with improved rigour and taking into account reviewers' feedback, the aim of the study is to determine the level of palliative care development in 198 countries in 2017, whilst ensuring comparability with previous versions. We present methods of data collection and analysis. Primary data on the level of palliative care development in 2017 was collected from in-country experts through an online questionnaire and, where required, supplemented by published documentary sources and grey literature. Population and per capita opioid consumption data were derived from independent sources. Data analysis was conducted according to a new scoring system and algorithm developed by the research team. The study was approved by the University of Glasgow College of Social Sciences Research Ethics Committee. Findings of the study will be disseminated in peer-reviewed journals, as a contribution to the second edition of the Global Atlas of Palliative Care at the End-of-Life, and via social media, including the Glasgow End of Life Studies Group blog and the project website. There are potential biases associated with self-reporting by key in-country experts. In some countries, the identified key expert failed to complete the questionnaire in whole or part and data limitations were potentially compounded by language restrictions, as questionnaires were available only in three European languages. The study relied in part on data from independent sources, the accuracy of which could not be verified.
尽管政策制定者、研究人员和活动家的兴趣日益浓厚,但仍缺乏科学依据来支持全球姑息治疗的发展。本研究介绍了绘制姑息治疗发展“世界地图”所采用的方法。在前两次迭代的基础上,提高了严谨性并考虑了审稿人的反馈,该研究的目的是确定2017年198个国家的姑息治疗发展水平,同时确保与以前版本具有可比性。我们介绍了数据收集和分析方法。2017年姑息治疗发展水平的主要数据通过在线问卷从国内专家处收集,并在需要时辅以已发表的文献资料和灰色文献。人口和人均阿片类药物消费数据来自独立来源。数据分析是根据研究团队开发的新评分系统和算法进行的。
该研究得到了格拉斯哥大学社会科学学院研究伦理委员会的批准。研究结果将在同行评审期刊上发表,作为对《全球临终关怀地图集》第二版的贡献,并通过社交媒体传播,包括格拉斯哥临终研究小组博客和项目网站。国内主要专家的自我报告存在潜在偏差。在一些国家,确定的关键专家未能全部或部分完成问卷,而且由于问卷仅提供三种欧洲语言,语言限制可能会使数据局限性更加复杂。该研究部分依赖于独立来源的数据,其准确性无法核实。