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2023年全球儿童姑息治疗发展状况图谱

Mapping of Children's Palliative Care Development Globally in 2023.

作者信息

Downing Julia, Chambers Lizzie, Daniels Alex, Ling Julie, Hamzah Ednin, Luyirika Emmanuel, Okhuysen-Cawley Regina, Doherty Megan, Baker Justin N

机构信息

International Children's Palliative Care Network, Bristol BS1 2NT, UK.

International Children's Palliative Care Network, Durban 3624, South Africa.

出版信息

Children (Basel). 2025 Mar 30;12(4):440. doi: 10.3390/children12040440.

Abstract

The demand for children's palliative care is increasingly urgent, with over 21 million children worldwide needing access, yet only 5-10% currently receiving it. Mapping the development of children's palliative care is important in tracking progress and focusing priorities for future work. In 2023, a cross-sectional survey was conducted to assess the status of children's palliative care globally, focusing on eight key indicators. Children's palliative care experts and stakeholders were asked to evaluate the perceived levels of development in their countries across five defined levels, ranging from no known provision to broad integration into health care services. Efforts were made to engage non-responding countries. Regional palliative care associations were consulted to validate the results. The survey was distributed to experts in 167/197 countries (85%), achieving data collection for 131 countries (78% of surveys sent). A total of 42% of countries (83) were at the lowest level of development (Level 1), while only 6% (11) of countries reached the highest level (Level 5), showing significant regional variation. An overall increase in children's palliative care globally was seen, including significant movement between levels. Variations were seen between regions and across country income categories, providing insight to inform ongoing efforts in service development, advocacy, education, research and access to essential medicines. There has been global progress in children's palliative care, although substantial gaps remain in access, particularly between high-income countries and low- and middle-income countries (LMICs). The study highlights the importance of a comprehensive approach to children's palliative care, with advocacy and education and training programmes being crucial for sustainable development.

摘要

儿童姑息治疗的需求日益迫切,全球超过2100万儿童需要获得该治疗,但目前只有5%-10%的儿童能够得到。描绘儿童姑息治疗的发展情况对于跟踪进展以及确定未来工作的重点至关重要。2023年,开展了一项横断面调查,以评估全球儿童姑息治疗的状况,重点关注八项关键指标。儿童姑息治疗专家和利益相关者被要求根据五个既定水平评估其所在国家的感知发展水平,范围从不了解提供情况到广泛纳入医疗服务。已努力促使未回复的国家参与。咨询了区域姑息治疗协会以验证结果。该调查分发给了197个国家中的167个国家(85%)的专家,共收集到131个国家的数据(占发送调查的78%)。共有42%的国家(83个)处于最低发展水平(1级),而只有6%(11个)的国家达到最高水平(5级),显示出显著的区域差异。全球儿童姑息治疗总体有所增加,包括不同水平之间的显著变化。不同区域和不同国家收入类别之间存在差异,这为服务发展、宣传、教育、研究和基本药物获取方面的持续努力提供了参考。儿童姑息治疗在全球取得了进展,尽管在获取方面仍存在巨大差距,尤其是在高收入国家与低收入和中等收入国家之间。该研究强调了儿童姑息治疗综合方法的重要性,宣传以及教育和培训计划对于可持续发展至关重要。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/c08b/12025680/7190be8766a1/children-12-00440-g001.jpg

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