Tripodoro Vilma A, Pons Juan José, Bastos Fernanda, Garralda Eduardo, Montero Álvaro, Béjar Ana Cristina, Centeno Carlos
Global Observatory of Palliative Care-WHO Collaborating Centre, Institute of Culture and Society, ATLANTES, University of Navarra, Pamplona (Navarra), Spain.
IdiSNA, Instituto de Investigación Sanitaria de Navarra, Pamplona (Navarra), Spain.
Res Health Serv Reg. 2024 Apr 18;3(1):5. doi: 10.1007/s43999-024-00043-z.
Palliative care is essential to global health services as it improves the quality of life of patients, their families and caregivers. The ATLANTES Global Observatory of Palliative Care (University of Navarra) was created a decade ago to promote a positive attitude towards patients with advanced illness in society and medicine. To do so, and over the past 15 years, ATLANTES has mapped palliative care data worldwide using public health, macro and comparative perspectives in different atlases. These have enabled data to be contextualised and good examples to be identified concisely and graphically. Atlases have been widely employed as advocacy tools within international institutions and ministries of health. While the aim and the perspective have remained unalterable over time, the methods and design have evolved throughout the publications from sober cartography and static infographics to big interactive data visualisation web tools. By embracing technology, ATLANTES has developed an open-access web mapping tool reuniting information from regional atlases, favouring global access to data. In 2022, matching the increasingly recognised need for robust monitoring of palliative care worldwide, ATLANTES became a WHO Collaborating Centre for the Global Monitoring of Palliative Care Development. This attempt to bridge the gap and ensure equitable care information in countries with limited palliative care access has resulted today in more accessible, self-explanatory, and visually appealing palliative care data.
姑息治疗对于全球卫生服务至关重要，因为它能提高患者、其家人及照护者的生活质量。十年前，（纳瓦拉大学的）亚特兰蒂斯全球姑息治疗观察站成立，旨在促进社会和医学界对晚期疾病患者持积极态度。为此，在过去15年里，亚特兰蒂斯利用不同地图集从公共卫生、宏观和比较的角度对全球姑息治疗数据进行了绘制。这些地图集使数据能够因地制宜，并以简洁直观的方式找出好的范例。地图集已在国际机构和各国卫生部广泛用作宣传工具。虽然目标和视角始终未变，但随着出版物的不断更新，方法和设计已从朴素的制图和静态信息图发展到大型交互式数据可视化网络工具。通过采用技术，亚特兰蒂斯开发了一个开放获取的网络地图工具，整合了区域地图集的信息，便于全球获取数据。2022年，为了满足全球对加强姑息治疗监测日益增长的需求，亚特兰蒂斯成为世界卫生组织全球姑息治疗发展监测合作中心。这种弥合差距并确保在姑息治疗资源有限的国家提供公平护理信息的尝试，如今带来了更易于获取、一目了然且视觉效果更佳的姑息治疗数据。
