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柬埔寨需要腹部手术的疾病患者的叙述:英勇/坚忍,以及应对“肉球”。

Patient narratives of illnesses requiring abdominal surgery in Cambodia: Heroic/stoic, and dealing with 'the ball of meat'.

机构信息

School of Medicine, University of Tasmania, Hobart, Australia.

School of Health Sciences, Massey University, Wellington, New Zealand.

出版信息

Glob Public Health. 2020 May;15(5):763-775. doi: 10.1080/17441692.2019.1636113. Epub 2019 Jun 30.

Abstract

This study describes the illness narratives that inform treatment-seeking behaviours for acute abdominal conditions in Cambodia, and thereby explores factors impeding the timely delivery of surgical intervention. Semi-structured qualitative interviews were undertaken with patients who had undergone abdominal surgery at Siem Reap Provincial Hospital between 2011 and 2014. Interviews collected basic demographic information and also patient narratives based on Groleau's McGill Illness Narrative Interview (MINI). Interviews were contemporaneously translated from Khmer to English and recorded for transcription. A content analysis of interview transcripts based on narrative enquiry was undertaken. Ninety-seven patients participated in the study and five themes emerged from the data. These were: Explanatory models about the causes of abdominal pain and effects of surgery; Pre-surgery stoicism and illness management; Fear of poor outcomes and death; Burden of treatment costs and anticipated recovery time; and, Enhancing community trust in surgery. Our findings add the patient voice to the limited evidence about access to surgery, and socio-cultural and financial barriers affecting treatment-seeking behaviours in Cambodia. By understanding the collective narratives surrounding experiences of abdominal surgery, efforts to improve surgical services in Cambodia may be better informed of the reasons patients delay treatment.

摘要

本研究描述了柬埔寨急性腹痛患者求医行为背后的疾病叙事,从而探讨了影响及时实施手术干预的因素。研究采用 Groleau 的 McGill 疾病叙事访谈(MINI),对 2011 年至 2014 年在暹粒省医院接受过腹部手术的患者进行了半结构化定性访谈。访谈收集了基本人口统计学信息和患者的疾病叙事。访谈内容从高棉语即时翻译成英语并记录下来以便转录。根据叙事探究对访谈记录进行了内容分析。共有 97 名患者参与了这项研究,研究结果中有 5 个主题:腹痛的病因和手术效果的解释模型;术前的坚忍和疾病管理;对不良后果和死亡的恐惧;治疗费用和预期康复时间的负担;以及增强社区对手术的信任。本研究将患者的声音纳入了关于柬埔寨获取手术机会的有限证据中,并纳入了影响求医行为的社会文化和经济障碍。通过了解围绕腹部手术体验的集体叙事,柬埔寨改善手术服务的努力可以更好地了解患者延迟治疗的原因。

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