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神经肌肉疾病的跨专业护理

Interprofessional Care for Neuromuscular Disease.

作者信息

Howard Ileana, Potts Abigail

机构信息

S-117 RCS, 1660 South Columbian Way, Seattle, WA, 98108, USA.

出版信息

Curr Treat Options Neurol. 2019 Jul 1;21(8):35. doi: 10.1007/s11940-019-0576-z.

DOI:10.1007/s11940-019-0576-z
PMID:31264031
Abstract

PURPOSE OF REVIEW

This review aims to delineate interprofessional care models for neuromuscular disease. Evidence regarding both the benefits and barriers to interprofessional neuromuscular care in both inpatient and outpatient settings is presented. Finally, opportunities to improve both access to and quality of care provided by interprofessional team clinics will be discussed.

RECENT FINDINGS

Although the term "multidisciplinary" is often misapplied to denote any interprofessional team-based care setting, there are important differences in team structure and dynamics in each of the three most common models: multidisciplinary, interdisciplinary, and transdisciplinary care. Evidence favors the more integrated interdisciplinary and transdisciplinary models for better patient outcomes and decreased staff burnout. Coordinated interprofessional care results in improved health outcomes, resource utilization, and patient satisfaction for persons with adult and pediatric neuromuscular disease. Distance remains the greatest barrier to specialized team-based care for this population; telehealth technologies may make interprofessional care more accessible to these persons. Despite limited evidence for the broader population of persons with neuromuscular disease, consensus guidelines increasingly support this model of care delivery. Further work may help determine effectiveness for other populations of persons with neuromuscular disease and best practices within these team-based models of care.

摘要

综述目的

本综述旨在阐述神经肌肉疾病的跨专业护理模式。文中呈现了有关住院和门诊环境下跨专业神经肌肉护理的益处及障碍的证据。最后,将讨论改善跨专业团队诊所提供的护理可及性和质量的机会。

最新发现

尽管“多学科”一词常被错误地用于指代任何基于跨专业团队的护理环境,但在三种最常见的模式(多学科、跨学科和跨专业护理)中,团队结构和动态存在重要差异。证据表明,更综合的跨学科和跨专业模式有利于取得更好的患者结局并减少工作人员倦怠。协调的跨专业护理可改善成人和儿童神经肌肉疾病患者的健康结局、资源利用情况及患者满意度。距离仍是该人群获得专科团队护理的最大障碍;远程医疗技术可能使这些人更容易获得跨专业护理。尽管针对更广泛的神经肌肉疾病患者群体的证据有限,但共识指南越来越支持这种护理提供模式。进一步的研究可能有助于确定该模式对其他神经肌肉疾病患者群体的有效性以及这些基于团队的护理模式中的最佳实践。

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Shifting Tides Toward a Proactive Patient-Centered Approach in Dysphagia Management of Neurodegenerative Disease.神经退行性疾病吞咽障碍管理中向主动以患者为中心方法转变的潮流。
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