Pirkle Catherine M, Vu Ngoc D, Ilagan Lindsey SK, Cacal Stephanie L, Stupplebeen David A, Nett Blythe
Office of Public Health Studies, University of Hawai'i at Mānoa, Honolulu, HI (CMP, NDV, SLC, DAS).
Chronic Disease Prevention and Health Promotion Division, Hawai'i State Department of Health, Honolulu, HI (LSKI, BN).
Hawaii J Med Public Health. 2019 Jun;78(6 Suppl 1):70-77.
Patients with diabetes regularly carry out multiple disease-management behaviors-taking prescribed medications, following diet and exercise regimens, self-monitoring their blood glucose concentrations, and coping emotionally with the condition-that may require ongoing support from community and clinical resources. Diabetes self-management education (DSME) is an ongoing, patient-centered process that helps provide the knowledge, skills, and ability for self-care. Evidence suggests that DSME is most effective when reinforced by community resources, through what are called community-clinical resources. We conducted a series of qualitative key-informant interviews with DSME coordinators/managers from all counties in Hawai'i to document the landscape of DSME services in the state, focusing specifically on challenges and recommendations. We analysed the results using the socioecological model in order to chart these factors by levels of influence on health care providers, in terms of service provision, and on patients, in terms of DSME utilization. Many interviewees highlighted concerns about low utilization of DSME services, as well as practical implementation challenges (eg, group versus 1-on-1 sessions). Nonetheless, DSME coordinators/managers offered numerous recommendations to improve DSME across Hawai'i, highlighting opportunities for improved community-clinical linkages. Finally, emergent from the interviews were anxieties about increasing numbers of youth with diabetes and insufficient resources for them in DSME or other community-clinical resources. This paper offers suggestions to expand community-clinical linkages and to adapt services provided by DSME to meet patient and community needs. It is particularly timely as Hawai'i is rapidly increasing the number and diversity of DSME programs available.
糖尿病患者经常要进行多种疾病管理行为,如服用处方药、遵循饮食和运动方案、自我监测血糖浓度以及从情绪上应对病情,而这些行为可能需要社区和临床资源持续提供支持。糖尿病自我管理教育(DSME)是一个持续的、以患者为中心的过程,有助于提供自我护理的知识、技能和能力。有证据表明,当通过所谓的社区临床资源得到社区资源强化时,DSME最为有效。我们对夏威夷所有县的DSME协调员/管理人员进行了一系列定性关键信息访谈,以记录该州DSME服务的情况,特别关注挑战和建议。我们使用社会生态模型分析结果,以便按对医疗服务提供者在服务提供方面以及对患者在DSME利用方面的影响程度来梳理这些因素。许多受访者强调了对DSME服务利用率低以及实际实施挑战(如小组授课与一对一授课)的担忧。尽管如此,DSME协调员/管理人员提出了许多建议来改善夏威夷全州的DSME,突出了改善社区临床联系的机会。最后,访谈中出现了对糖尿病青年人数增加以及DSME或其他社区临床资源中为他们提供的资源不足的担忧。本文提出了扩大社区临床联系以及调整DSME提供的服务以满足患者和社区需求的建议。鉴于夏威夷正在迅速增加可用的DSME项目的数量和多样性,这一点尤为及时。