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披露女同性恋、男同性恋和双性恋癌症护理:迈向健康促进的医疗环境。

Disclosure in lesbian, gay and bisexual cancer care: towards a salutogenic healthcare environment.

机构信息

Centre for LGBTQ Research, De Montfort University, The Gateway, Leicester, LE1 9BH, UK.

Division of Psychology, De Montfort University, Leicester, LE1 9BH, UK.

出版信息

BMC Cancer. 2019 Jul 10;19(1):678. doi: 10.1186/s12885-019-5895-7.

DOI:10.1186/s12885-019-5895-7
PMID:31291940
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6617610/
Abstract

BACKGROUND

The literature on sexual orientation disclosure is arguably one of the most developed in the field of lesbian, gay and bisexual (LGB) people in healthcare in English speaking countries however, relatively little research has been conducted into disclosure in cancer care. Studies have been mainly undertaken in primary care where distinct circumstances pertain and where the benefits of disclosure include obtaining appropriate health information, treatment advice and avoiding misdiagnosis.

METHODS

We conducted an in-depth qualitative study primarily recruiting patients through oncology care in hospital settings and through LGB community cancer support groups. Data were gathered through semi-structured interviews with 30 LGB patients with different cancer types.

RESULTS

Data were analysed using thematic analysis and interpreted and interrogated through salutogenesis theory which offers a useful lens through which to consider the health promoting effects of sexual orientation disclosure in cancer care. We present three themes as part of the analysis: Authenticity as a driver for disclosure in cancer care, Partners as a (potential) salutogenic resource and Creating safe, healing environments conducive to disclosure. The findings are reported and discussed in relation to three inter-related concepts from current salutogenesis theorising including a sense of coherence, generalised resistance resources and healing environments which can facilitate sexual orientation disclosure.

CONCLUSION

Our findings enable a more nuanced approach to understanding disclosure in this context. This study contributes to the literature through its articulation of the salutogenic potential of disclosure (if responded to appropriately) for LGB patients as individuals, in relationship to their partners or carers and the role of creating a visible healing-oriented optimal environment to promote quality of life and recovery.

摘要

背景

同性恋、双性恋和跨性别者(LGBT)在医疗保健中的性取向披露文献可以说是英语国家中最发达的领域之一,然而,关于癌症护理中的披露研究相对较少。这些研究主要是在初级保健中进行的,那里有不同的情况,披露的好处包括获得适当的健康信息、治疗建议和避免误诊。

方法

我们进行了一项深入的定性研究,主要通过医院环境中的肿瘤护理以及通过 LGBT 社区癌症支持小组招募患者。通过对 30 名不同癌症类型的 LGBT 患者进行半结构化访谈收集数据。

结果

使用主题分析对数据进行分析,并通过健康成长理论进行解释和质疑,该理论提供了一个有用的视角,可以考虑性取向披露在癌症护理中的健康促进作用。我们提出了三个主题作为分析的一部分:在癌症护理中披露的真实性作为驱动力、伴侣作为(潜在)健康促进资源以及创造安全、有利于披露的治疗环境。研究结果在与当前健康成长理论中的三个相互关联的概念有关的报告和讨论中进行了报告和讨论,包括一致性感、普遍的抵抗资源和有利于披露的治疗环境。

结论

我们的发现使我们能够更细致地理解这种背景下的披露。本研究通过阐明披露(如果得到适当回应)对 LGBT 患者作为个体、与他们的伴侣或照顾者的关系以及创造可见的以治疗为导向的最佳环境的作用,为文献做出了贡献,以促进生活质量和康复。

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