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结直肠癌的女同性恋、男同性恋或双性恋幸存者的经历与担忧。

Experiences and Concerns of Lesbian, Gay, or Bisexual Survivors of Colorectal Cancer.

作者信息

Baughman Allyson, Clark Melissa A, Boehmer Ulrike

机构信息

Boston University.

University of Massachusetts Medical School.

出版信息

Oncol Nurs Forum. 2017 May 1;44(3):350-357. doi: 10.1188/17.ONF.350-357.

Abstract

PURPOSE/OBJECTIVES: To identify the experiences and needs of lesbian, gay, or bisexual (LGB) survivors of colorectal cancer (CRC) and to expand the current understanding of LGB survivorship by obtaining in-depth knowledge of survivorship among individuals with a cancer other than breast or prostate. 
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RESEARCH APPROACH: Qualitative, semistructured individual interviews via telephone.
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SETTING: Participants were recruited using social media, flyers, word of mouth, and contact with LGB and cancer organizations during a four-month period.
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PARTICIPANTS: Eight LGB individuals with a diagnosis of stage III CRC from 2009-2014. 
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METHODOLOGIC APPROACH: All interviews were audio recorded and then transcribed verbatim. Thematic analysis performed by more than one analyst was used for the interview transcripts. 
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FINDINGS: Participants described experiences with social support and isolation, cancer care from an LGB perspective, and substantial economic impacts of their cancer diagnosis. In addition, they reported struggles with health insurance coverage, employment, and housing during and after their treatment for CRC. 
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CONCLUSIONS: In addition to issues regarding sexual identity disclosure and social support, economic impacts of CRC exist; these are likely critical to healthy survivorship in LGB men and women. 
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INTERPRETATION

Attention should be paid to the economic impact of CRC on LGB individuals, along with issues of social support and sexual identity disclosure. Oncology nurses could play an important role in determining the economic and social needs of patients with CRC, accepting the often nontraditional support networks of LGB individuals, and facilitating disclosure of an LGB identity.

摘要

目的/目标:确定结直肠癌(CRC)的女同性恋、男同性恋或双性恋(LGB)幸存者的经历和需求,并通过深入了解除乳腺癌或前列腺癌之外的癌症患者的生存情况,来扩展当前对LGB生存情况的认识。

研究方法

通过电话进行定性、半结构化的个人访谈。

研究背景

在四个月的时间里,通过社交媒体、传单、口碑以及与LGB和癌症组织的联系招募参与者。

参与者

2009年至2014年期间被诊断为III期CRC的八名LGB个体。

方法学途径

所有访谈均进行录音,然后逐字转录。由多名分析师对访谈记录进行主题分析。

研究结果

参与者描述了社会支持和孤立的经历、从LGB角度看癌症护理情况,以及癌症诊断带来的重大经济影响。此外,他们报告了在CRC治疗期间及之后在医疗保险覆盖、就业和住房方面的困难。

结论

除了性取向披露和社会支持问题外,CRC还存在经济影响;这些可能对LGB男性和女性的健康生存至关重要。

解读

应关注CRC对LGB个体的经济影响,以及社会支持和性取向披露问题。肿瘤护士在确定CRC患者的经济和社会需求、接受LGB个体通常非传统的支持网络以及促进LGB身份的披露方面可以发挥重要作用。

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