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15 分钟咨询:治疗缺氧缺血性脑病的婴儿的低温疗法——为父母翻译术语、预后和不确定性。

Fifteen-minute consultation: Therapeutic hypothermia for infants with hypoxic ischaemic encephalopathy-translating jargon, prognosis and uncertainty for parents.

机构信息

Neonatal Intensive Care Unit, Southmead Hospital, Bristol, UK.

Neonatal Intensive Care Unit, St Michael's Hospital, University Hospitals Bristol NHS Foundation Trust, Bristol, UK.

出版信息

Arch Dis Child Educ Pract Ed. 2020 Apr;105(2):75-83. doi: 10.1136/archdischild-2017-314116. Epub 2019 Jul 10.

Abstract

Hypoxic ischaemic encephalopathy may lead to death or severe long-term morbidity. Therapeutic hypothermia (TH) increases survival without impairments in childhood, but prognostic uncertainty may remain for years after birth. Clear and accurate communication is imperative but challenging. This article explores the predictive value of routinely performed assessments during TH, as well as the qualitative research relating to parental experience. This article will benefit paediatric trainees, consultants and nurse practitioners in providing: (1) the background information needed for initiating a conversation with parents regarding outcome and (2) optimising their communication with parents in translating jargon, prognosis and uncertainty.

摘要

缺氧缺血性脑病可导致死亡或严重的长期发病。治疗性低体温(therapeutic hypothermia,TH)可提高儿童的存活率而不造成损伤,但出生后数年仍可能存在预后不确定的问题。清晰准确的沟通至关重要,但具有挑战性。本文探讨了 TH 期间常规进行的评估的预测价值,以及与父母体验相关的定性研究。本文将使儿科受训者、顾问和护士从业者受益,使他们能够:(1)为与父母就结局进行沟通提供所需的背景信息;(2)优化与父母的沟通,避免使用术语、预测和不确定性。

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