新生儿接受治疗性低温治疗的父母的体验：一项焦点小组研究。
Experiences of parents whose school-aged children were treated with therapeutic hypothermia as newborns: A focus group study.
机构信息
Department of Clinical Science, Intervention and Technology, Division of Paediatrics, Karolinska Institutet, Stockholm, Sweden.
Department of Neonatology, Karolinska University Hospital, Stockholm, Sweden.
出版信息
Nurs Open. 2023 Nov;10(11):7411-7421. doi: 10.1002/nop2.1994. Epub 2023 Sep 26.
AIM
To describe parents' past and present experiences of their newborn infant's therapeutic hypothermia (TH) treatment after perinatal asphyxia 10-13 years after the event.
BACKGROUND
Newborn infants are treated with TH following perinatal asphyxia to improve neurodevelopmental outcomes.
DESIGN
A qualitative descriptive design using focus groups (FGs).
METHODS
Twenty one parents to 15 newborn infants treated with TH between 2007 and 2009 participated in five FGs. The FGs were transcribed verbatim and analysed using framework approach. The SRQR checklist was followed for study reporting.
RESULTS
Two main categories were identified: hardships and reliefs during TH treatment and struggles of everyday life. Both categories include three subcategories, the first: (1) concern and gratitude for the unrecognized treatment, (2) insufficiency of information and proposed participation and (3) NICU nurses instilled security and hope. The second with subcategories: (1) unprocessed experiences of the TH treatment, (2) later challenges at school and (3) existential and psychological challenges in everyday life.
CONCLUSION
TH of their newborns affected the parents psychologically not only during the treatment, but lasted months and years later. Information and communication with health care professionals and school management were inefficient and inadequate. The parents' concerns could be prevented by an improved identification and understanding of the problems and the needs of the infants and their families before discharge.
RELEVANCE FOR CLINICAL PRACTICE
Through more personalized and efficient preparation and communication by the nursing staff before discharge, many of the parents' worries and problems could be reduced. Check-up of parents' needs of psychosocial support before and after discharge and offering counselling should become routine. Also, nurses at Well-Baby Clinics and in school health care should receive knowledge about TH treatment and the challenges the children and the parents experience.
PATIENT OR PUBLIC CONTRIBUTION
Participation of parents was limited to the data provided through interviews.
目的
描述围产期窒息后 10-13 年后接受新生儿治疗性低温（TH）治疗的父母过去和现在的经历。
背景
对围产期窒息的新生儿进行 TH 治疗以改善神经发育结局。
设计
使用焦点小组（FG）的定性描述设计。
方法
21 名父母参与了 2007 年至 2009 年间接受 TH 治疗的 15 名新生儿的 5 个 FG。FG 逐字转录并使用框架方法进行分析。研究报告遵循了 SRQR 检查表。
结果
确定了两个主要类别：TH 治疗期间的困难和缓解以及日常生活的挣扎。这两个类别都包括三个子类别，第一个是：（1）对未被识别的治疗的关注和感激，（2）信息不足和提出的参与，（3）新生儿重症监护病房护士灌输的安全感和希望。第二个是：（1）TH 治疗的未处理经验，（2）后来在学校的挑战，（3）日常生活中的存在和心理挑战。
结论
新生儿的 TH 不仅在治疗期间对父母的心理产生了影响，而且在几个月甚至几年后仍然存在。与医疗保健专业人员和学校管理层的信息和沟通效率低下且不足。通过在出院前由护理人员进行更个性化和有效的准备和沟通，可以预防父母的担忧。在出院前和出院后检查父母的心理社会支持需求并提供咨询应成为常规。此外，婴儿健康诊所和学校保健中心的护士应接受关于 TH 治疗和儿童及其父母所经历的挑战的知识培训。
临床意义
通过在出院前由护理人员进行更个性化和有效的准备和沟通，可以减轻许多父母的担忧和问题。在出院前和出院后检查父母的心理社会支持需求并提供咨询应成为常规。此外，婴儿健康诊所和学校保健中心的护士应接受关于 TH 治疗和儿童及其父母所经历的挑战的知识培训。
患者或公众贡献
患者或公众的参与仅限于通过访谈提供的数据。
Zotero 插件