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肝病患者教育需求评估

An Educational Needs Assessment for Patients with Liver Disease.

作者信息

Al Ghamdi Sarah S, Shah Hemant

机构信息

Division of Gastroenterology, Department of Medicine, University of Toronto, Toronto, ON, Canada.

Toronto Centre for Liver Disease, University Health Network, Toronto ON, Canada.

出版信息

J Can Assoc Gastroenterol. 2018 Apr 12;1(2):54-59. doi: 10.1093/jcag/gwy012. eCollection 2018 Jun.

Abstract

INTRODUCTION

Liver disease forms a global health burden and is a cause of significant morbidity and mortality. Good patient education has proven to be a key tool in disease management, providing significant benefit in knowledge and behavioral modifications. To develop effective educational tools, a good understanding of patient educational needs and preferred learning methods is necessary. Few studies have evaluated the educational needs of patients with liver disease. This study aims to assess the educational needs of patients at a large tertiary liver center.

METHOD

This study was a questionnaire-based cross-sectional study evaluating patient demographics,perceived and unperceived educational needs (hepatitis B and hepatitis Cknowledge) at a tertiary liver centre.

RESULTS

A total of 300 patients completed the questionnaire. Most patients stated they were "extremely" or "quite" interested in learning more about their liver condition (84.9%, n=242), in either "moderate" or "a lot of" detail (94.6%, n=202). There was no association between gender, age, level of education, annual income and interest of patients in learning more about their liver condition. There was a significant association between number of clinic visits and interest to learn more (p=0.022), but there was no association between the duration of their follow-up at the clinic and their interest to learn more (p=0.243).

CONCLUSIONS

Overall, patients showed great interest in learning more about their liver condition, potentially indicating a need for more educational programs. Most patients prefer reading (via internet or pamphlets/brochures) or one-to-one discussions, giving us a good sense of potentially successful educational strategies that will fit the needs of most patients.

摘要

引言

肝脏疾病构成了一项全球健康负担,是导致严重发病和死亡的一个原因。事实证明,良好的患者教育是疾病管理的关键工具,在知识和行为改变方面具有显著益处。为了开发有效的教育工具,有必要充分了解患者的教育需求和偏好的学习方法。很少有研究评估过肝病患者的教育需求。本研究旨在评估一家大型三级肝病中心患者的教育需求。

方法

本研究是一项基于问卷调查的横断面研究,在一家三级肝病中心评估患者的人口统计学特征、感知到的和未被感知到的教育需求(乙肝和丙肝知识)。

结果

共有300名患者完成了问卷调查。大多数患者表示他们“极其”或“相当”有兴趣更多地了解自己的肝脏状况(84.9%,n = 242),希望了解“中等”或“很多”细节(94.6%,n = 202)。患者的性别、年龄、教育程度、年收入与对更多了解自己肝脏状况的兴趣之间没有关联。门诊就诊次数与了解更多的兴趣之间存在显著关联(p = 0.022),但在门诊的随访时长与了解更多的兴趣之间没有关联(p = 0.243)。

结论

总体而言,患者对更多了解自己的肝脏状况表现出极大兴趣,这可能表明需要更多的教育项目。大多数患者更喜欢阅读(通过互联网或宣传册/小册子)或一对一讨论,这让我们大致了解了可能适合大多数患者需求的成功教育策略。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/f3b7/6487992/76605099233f/gwy01201.jpg

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