患者对丙型肝炎及其治疗的看法。
Patient perspectives on hepatitis C and its treatment.
机构信息
aThe VA North Texas Health Care System Departments of bPsychiatry cSurgery, Division of Emergency Medicine dDepartment of Internal Medicine, Division of Infectious Diseases, The University of Texas Southwestern Medical Center eThe University of Texas Southwestern Medical Center, Graduate School of Biomedical Sciences, Dallas, Texas fThe University of Alabama School of Social Work, Tuscaloosa, Alabama gDepartment of Psychiatry, Washington University School of Medicine, St. Louis, Missouri, USA.
出版信息
Eur J Gastroenterol Hepatol. 2014 Jan;26(1):74-81. doi: 10.1097/MEG.0b013e32836382b5.
OBJECTIVE
Much of the research to date on barriers to treatment for patients with hepatitis C has approached the problem from either the perspective of the medical provider or the healthcare system.
METHODS
To better understand these barriers from the patients' perspectives, nine exploratory focus groups of patients with hepatitis C (N=48) were conducted in 2008 and 2009, using a hybrid qualitative analysis.
RESULTS
Eight content categories emerged. Treatment-related issues, including barriers to care, were most emphasized, representing nearly one-half of the entire content. Need for accurate disease-related information was also extensively discussed. Social factors were important, including considerable focus on stigma. Participants described coping abilities including faith and perseverance.
CONCLUSION
Areas of concern expressed in these focus groups represent underexplored areas that may warrant additional attention or areas for intervention and investigation, such as exploring differences between perceptions of patients and providers regarding the hepatitis C treatment process and addressing barriers to care.
目的
迄今为止，针对丙型肝炎患者治疗障碍的研究大多从医疗服务提供者或医疗体系的角度来探讨这一问题。
方法
为了从患者的角度更好地了解这些障碍，我们于 2008 年和 2009 年进行了九项针对丙型肝炎患者的探索性焦点小组研究（N=48），采用混合定性分析。
结果
出现了八个内容类别。与治疗相关的问题，包括治疗障碍，是最受关注的问题，占整个内容的近一半。对准确的疾病相关信息的需求也进行了广泛的讨论。社会因素很重要，包括对耻辱感的高度关注。参与者描述了应对能力，包括信仰和毅力。
结论
这些焦点小组中表达的关注领域代表了尚未充分探讨的领域，这些领域可能需要进一步关注或干预和调查，例如探讨患者和提供者对丙型肝炎治疗过程的看法差异，并解决治疗障碍。
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