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基于伊朗残疾程度的多发性硬化症患者的职业表现

Occupational performance of individuals with Multiple Sclerosis based on disability level in Iran.

作者信息

Dehghan Leila, Faraji Fardin, Dalvand Hamid, Shamsoddini Alireza, Hadian-Rasanani Mohammad Reza

机构信息

Department of Occupational Therapy, School of Rehabilitation, Arak University of Medical Sciences, Arak, Iran.

Department of Neurology, School of Medicine, Arak University of Medical Sciences, Arak, Iran.

出版信息

Iran J Neurol. 2019 Jan 5;18(1):1-6.

Abstract

Multiple sclerosis (MS) is a common disease across the world as well as in Iran. Individuals with MS usually experience occupational performance problems that result in limitations in their daily life. This study aimed to determine the occupational performance of individuals with MS based on the disability level in Iran. In this cross-sectional study, 50 individuals with MS (20 to 50 years old) were recruited through a convenience sampling strategy from different clinics in Arak City, Iran, during 2016-2017. The Persian versions of Canadian Occupational Performance Measure (COPM) and Expanded Disability Status Scale (EDSS) were used to assess the status of occupational performance and level of disability. The data were analyzed using chi-square, Spearman's rank correlation, and Mann-Whitney U tests. The total number of 248 occupations were identified as difficult to perform in the following areas: 125 (50.40%) in self-care, 58 (23.38%) in productivity, and 65 (26.20%) in leisure. In addition, the prioritized occupations (n = 149, median: 3, range: 1-4) had significant difference in the distribution of occupations compared with the non-prioritized occupations (P < 0.0001) and the ratings for performances and satisfactions were generally low. There were significant differences between the occupational performance and level of EDSS. The findings of current study suggest that individuals with MS suffer from widespread problems in the areas of occupational performance, particularly in self-care. The findings emphasize the need for identifying the problems of daily occupations in individuals with MS.

摘要

多发性硬化症(MS)在全球以及伊朗都是一种常见疾病。患有MS的个体通常会经历职业表现问题,这些问题导致他们日常生活受限。本研究旨在根据伊朗的残疾水平确定MS患者的职业表现。在这项横断面研究中,2016 - 2017年期间,通过便利抽样策略从伊朗阿拉克市不同诊所招募了50名年龄在20至50岁之间的MS患者。使用加拿大职业表现测量量表(COPM)和扩展残疾状态量表(EDSS)的波斯语版本来评估职业表现状况和残疾水平。数据采用卡方检验、Spearman等级相关性检验和Mann - Whitney U检验进行分析。共确定了248项职业在以下方面难以完成:自我护理方面125项(50.40%),生产力方面58项(23.38%),休闲方面65项(26.20%)。此外,优先考虑的职业(n = 149,中位数:3,范围:1 - 4)与未优先考虑的职业相比,职业分布存在显著差异(P < 0.0001),并且表现和满意度评分普遍较低。职业表现与EDSS水平之间存在显著差异。本研究结果表明,MS患者在职业表现领域存在广泛问题,尤其是在自我护理方面。这些发现强调了识别MS患者日常职业问题的必要性。

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