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运用家庭管理模式框架理解父母晚期癌症的家庭反应。

Understanding familial response to parental advanced cancer using the family management style framework.

机构信息

Department of Psychiatry , University of North Carolina , Chapel Hill , North Carolina, USA.

Department of Medicine , University of North Carolina , Chapel Hill , North Carolina, USA.

出版信息

J Psychosoc Oncol. 2019 Nov-Dec;37(6):758-776. doi: 10.1080/07347332.2019.1614132. Epub 2019 Jul 18.

Abstract

A parental advanced cancer diagnosis can have profound and lasting impact on family functioning. We used an adapted version of the Family Management Style Framework (FMSF) to identify and describe patterns of family management in parental advanced cancer. This is a secondary analysis of data from a cross-sectional, mixed-methods study. Forty-two adults participated in semi-structured, in-depth interviews about their experiences as a parent with advanced cancer and completed measures of psychosocial functioning. We analyzed interviews using codes derived from the FMSF and used directed content analysis to identify themes reflected in the coded data. We identified five distinct patterns of family management in parental advanced cancer: (1) ; (2) ; (3) ; (4) ; and (5) . The FMSF was a useful framework for differentiating and understanding underlying patterns of family response to parental advanced cancer.

摘要

父母的晚期癌症诊断会对家庭功能产生深远而持久的影响。我们使用经过改编的家庭管理风格框架(FMSF)来识别和描述父母晚期癌症中的家庭管理模式。这是一项对横断面混合方法研究数据的二次分析。42 名成年人参加了关于他们作为晚期癌症父母的经历的半结构式深入访谈,并完成了心理社会功能测量。我们使用源自 FMSF 的代码分析访谈,并使用有针对性的内容分析来识别编码数据中反映的主题。我们确定了父母晚期癌症中五种不同的家庭管理模式:(1) ;(2) ;(3) ;(4) ;和(5) 。FMSF 是区分和理解父母晚期癌症家庭反应的基础模式的有用框架。

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本文引用的文献

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Parenting while living with advanced cancer: A qualitative study.晚期癌症患者的育儿经历:一项定性研究。
Palliat Med. 2017 Mar;31(3):231-238. doi: 10.1177/0269216316661686. Epub 2016 Aug 6.
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End-of-life experiences of mothers with advanced cancer: perspectives of widowed fathers.晚期癌症母亲的临终经历:丧偶父亲的观点
BMJ Support Palliat Care. 2016 Dec;6(4):437-444. doi: 10.1136/bmjspcare-2015-000976. Epub 2015 Dec 18.
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Overlooked and underserved: Widowed fathers with dependent-age children.被忽视且未得到充分服务:有未成年子女的鳏夫。
Palliat Support Care. 2015 Oct;13(5):1325-34. doi: 10.1017/S1478951514001321. Epub 2014 Nov 11.
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