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“我们已完全恢复正常,但我想说这是一种新的正常状态”:对农村家庭中父母一方被诊断患有癌症后适应功能的质性探索。

'We're completely back to normal, but I'd say it's a new normal': a qualitative exploration of adaptive functioning in rural families following a parental cancer diagnosis.

作者信息

Garrard E D, Fennell K M, Wilson C

机构信息

School of Psychology, The University of Adelaide, North Terrace Campus, Level 5 Hughes Building, Adelaide, South Australia, 5000, Australia.

Sansom Institute for Health Research, Division of Health Sciences, University of South Australia, City East Campus, P5-06H Playford Building, Adelaide, South Australia, 5000, Australia.

出版信息

Support Care Cancer. 2017 Nov;25(11):3561-3568. doi: 10.1007/s00520-017-3785-6. Epub 2017 Jun 21.

Abstract

PURPOSE

The purpose of this study was to explore rural families' functioning following a parental cancer diagnosis.

METHOD

Ten families in which a parent of dependent children had received a cancer diagnosis were purposively sampled using two questionnaires based upon the Resiliency Model of Family Adjustment and Adaptation (RMFAA): the Family Crisis Oriented Personal Evaluation Scales (F-COPES) and the Family Attachment Changeability Index 8 (FACI8). The total participant number was 34, which comprised the involvement of 17 parents and 17 children. The use of questionnaires ensured representation from both high and low functioning families. Qualitative data were gathered via semi-structured family interviews, and thematic analysis was used.

RESULTS

Families identified three key challenges that are not accounted for by the RMFAA and may be unique to the rural cancer patient experience: frequent travel, increased work/financial demands and family separation. Families also described a number of protective factors that enabled them to cope with the demands of the cancer diagnosis, some of which were specific to rural families, while others may apply to Australian families more broadly. Many of these protective factors aligned with the RMFAA framework.

CONCLUSION

The findings suggest that rural families' ability and willingness to access external resources, including informal community support and formal support services, are influenced by the strength of their internal protective factors. This result has practical implications for the development of interventions that accommodate the specific supportive care needs of rural families affected by cancer.

摘要

目的

本研究旨在探讨父母被诊断患有癌症后农村家庭的功能状况。

方法

采用基于家庭适应与调整弹性模型(RMFAA)的两份问卷,即家庭危机导向个人评估量表(F-COPES)和家庭依恋可变性指数8(FACI8),有目的地抽取了10个家庭作为样本,这些家庭中抚养子女的父母一方被诊断患有癌症。总参与人数为34人,包括17名父母和17名子女。问卷的使用确保了高功能和低功能家庭都有代表参与。通过半结构化家庭访谈收集定性数据,并进行主题分析。

结果

家庭确定了RMFAA未涵盖的三个关键挑战,这些挑战可能是农村癌症患者经历所特有的:频繁出行、工作/经济需求增加以及家庭分离。家庭还描述了一些使他们能够应对癌症诊断带来的需求的保护因素,其中一些是农村家庭特有的,而另一些可能更广泛地适用于澳大利亚家庭。许多这些保护因素与RMFAA框架一致。

结论

研究结果表明,农村家庭获取外部资源(包括非正式社区支持和正式支持服务)的能力和意愿受到其内部保护因素强度的影响。这一结果对于开发适应受癌症影响的农村家庭特定支持性护理需求的干预措施具有实际意义。

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