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A learning health network for pediatric liver transplantation: Inaugural meeting report from the Starzl Network for Excellence in Pediatric Transplantation.小儿肝移植学习健康网络:来自施塔兹小儿移植卓越网络的首次会议报告
Pediatr Transplant. 2019 Sep;23(6):e13528. doi: 10.1111/petr.13528. Epub 2019 Jul 22.
2
A Learning Health System for Pediatric Liver Transplant: The Starzl Network for Excellence in Pediatric Transplantation.儿科肝移植学习型医疗体系:Starzl 网络卓越儿童移植。
J Pediatr Gastroenterol Nutr. 2021 Mar 1;72(3):417-424. doi: 10.1097/MPG.0000000000002974.
3
Feasibility of using a patient-reported outcome measure into clinical practice following pediatric liver transplantation: The Starzl Network experience.小儿肝移植后将患者报告的结局指标应用于临床实践的可行性:施塔兹网络的经验。
Pediatr Transplant. 2023 Feb;27(1):e14409. doi: 10.1111/petr.14409. Epub 2022 Oct 22.
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Quality initiatives in pediatric transplantation.儿科移植中的质量举措。
Curr Opin Organ Transplant. 2019 Feb;24(1):64-72. doi: 10.1097/MOT.0000000000000595.
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J Pediatr Surg. 2023 Dec;58(12):2416-2428. doi: 10.1016/j.jpedsurg.2023.07.006. Epub 2023 Jul 13.
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Pediatric collaborative networks for quality improvement and research.用于质量改进和研究的儿科协作网络。
Acad Pediatr. 2013 Nov-Dec;13(6 Suppl):S69-74. doi: 10.1016/j.acap.2013.07.004.
7
Patient-centered research in pediatric transplant: Engaging families and recipients.以患儿为中心的儿科移植研究:让家庭和受者参与进来。
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JBI Database System Rev Implement Rep. 2015 Jan;13(1):14-26. doi: 10.11124/jbisrir-2015-1694.
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Pediatric collaborative improvement networks: background and overview.儿科合作改进网络:背景与概述。
Pediatrics. 2013 Jun;131 Suppl 4:S189-95. doi: 10.1542/peds.2012-3786E.
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Quality measurement and improvement in liver transplantation.肝移植中的质量测量和改进。
J Hepatol. 2018 Jun;68(6):1300-1310. doi: 10.1016/j.jhep.2018.02.034. Epub 2018 Mar 17.

引用本文的文献

1
Association Between Early Immunosuppression Center Variability and One-Year Outcomes After Pediatric Liver Transplant.儿童肝移植后早期免疫抑制中心变异性与一年期预后之间的关联
Pediatr Transplant. 2025 Feb;29(1):e70018. doi: 10.1111/petr.70018.
2
Bridging the Gap: A Review of Pediatric to Adult Transition of Care in Liver Transplantation.弥合差距:肝移植中儿童到成人护理过渡的综述
Pediatr Transplant. 2025 Feb;29(1):e14900. doi: 10.1111/petr.14900.
3
Impact of early immunosuppression on pediatric liver transplant outcomes within 1 year.早期免疫抑制对儿童肝移植 1 年内结局的影响。
J Pediatr Gastroenterol Nutr. 2024 Feb;78(2):328-338. doi: 10.1002/jpn3.12112. Epub 2024 Jan 2.
4
Establishment of a Public Mental Health Database for Research Purposes in the Ferrara Province: Development and Preliminary Evaluation Study.费拉拉省用于研究目的的公共心理健康数据库的建立:开发与初步评估研究
JMIR Med Inform. 2023 Aug 9;11:e45523. doi: 10.2196/45523.
5
Systematic review on the involvement and engagement of patients as advisers for the organisation of organ transplantation services.系统评价患者作为顾问参与和参与器官移植服务组织的情况。
BMJ Open. 2023 May 10;13(5):e072091. doi: 10.1136/bmjopen-2023-072091.
6
Decreased Incidence of Hepatic Artery Thrombosis in Pediatric Liver Transplantation Using Technical Variant Grafts: Report of the Society of Pediatric Liver Transplantation Experience.使用技术变异移植物可降低儿科肝移植中肝动脉血栓形成的发生率:来自儿科肝移植协会的经验报告。
J Pediatr. 2020 Nov;226:195-201.e1. doi: 10.1016/j.jpeds.2020.06.053. Epub 2020 Jun 22.

本文引用的文献

1
Quality initiatives in pediatric transplantation.儿科移植中的质量举措。
Curr Opin Organ Transplant. 2019 Feb;24(1):64-72. doi: 10.1097/MOT.0000000000000595.
2
The Collaborative Improvement and Innovation Network project to drive quality improvement.协作改进和创新网络项目推动质量改进。
Curr Opin Organ Transplant. 2019 Feb;24(1):73-81. doi: 10.1097/MOT.0000000000000596.
3
Using a network organisational architecture to support the development of Learning Healthcare Systems.利用网络组织架构支持学习型医疗保健系统的发展。
BMJ Qual Saf. 2018 Nov;27(11):937-946. doi: 10.1136/bmjqs-2017-007219. Epub 2018 Feb 5.
4
Analysis of Liver Offers to Pediatric Candidates on the Transplant Wait List.对移植等待名单上儿科候选者肝脏供体情况的分析。
Gastroenterology. 2017 Oct;153(4):988-995. doi: 10.1053/j.gastro.2017.06.053. Epub 2017 Jul 13.
5
Variation in resource utilization in liver transplantation at freestanding children's hospitals.独立儿童医院肝移植资源利用的差异。
Pediatr Transplant. 2016 Nov;20(7):921-925. doi: 10.1111/petr.12783. Epub 2016 Oct 20.
6
Failure to Rescue as a Quality Improvement Approach in Transplantation: A First Effort to Evaluate This Tool in Pediatric Liver Transplantation.将“未能挽救作为移植领域质量改进方法:在小儿肝移植中评估该工具的首次尝试” 作为移植领域质量改进方法:在小儿肝移植中评估该工具的首次尝试。
Transplantation. 2016 Apr;100(4):801-7. doi: 10.1097/TP.0000000000001121.
7
Heterogeneity and disparities in the use of exception scores in pediatric liver allocation.儿童肝移植中例外评分使用的异质性和差异。
Am J Transplant. 2015 Feb;15(2):436-44. doi: 10.1111/ajt.13089.
8
Toward a science of learning systems: a research agenda for the high-functioning Learning Health System.迈向学习系统科学:高效学习型健康系统的研究议程。
J Am Med Inform Assoc. 2015 Jan;22(1):43-50. doi: 10.1136/amiajnl-2014-002977. Epub 2014 Oct 23.
9
PEDSnet: how a prototype pediatric learning health system is being expanded into a national network.儿科电子数据网络(PEDSnet):一个儿科学习型健康系统原型如何扩展为全国性网络。
Health Aff (Millwood). 2014 Jul;33(7):1171-7. doi: 10.1377/hlthaff.2014.0127.
10
Collaborative networks for both improvement and research.合作网络,用于改进和研究。
Pediatrics. 2013 Jun;131 Suppl 4:S210-4. doi: 10.1542/peds.2012-3786H.

小儿肝移植学习健康网络:来自施塔兹小儿移植卓越网络的首次会议报告

A learning health network for pediatric liver transplantation: Inaugural meeting report from the Starzl Network for Excellence in Pediatric Transplantation.

作者信息

Squires James E, Logan Beth, Lorts Angela, Haskell Henrisa, Sisaithong Kristen, Pillari Tony, Szolna Jonathan, Dodd Darcy, Gonzalez-Peralta Regino P, Hsu Evelyn, Kelly Beau, Kosmach-Park Beverly, Lobritto Steven, Ng Vicky L, Perito Emily, Rasmussen Sara, Romero Rene, Shemesh Eyal, Karolak Hannah, Mazariegos George V

机构信息

Division of Gastroenterology and Hepatology, UPMC Children's Hospital of Pittsburgh, Pittsburgh, Pennsylvania.

Hillman Center for Pediatric Transplantation, UPMC Children's Hospital of Pittsburgh, Pittsburgh, Pennsylvania.

出版信息

Pediatr Transplant. 2019 Sep;23(6):e13528. doi: 10.1111/petr.13528. Epub 2019 Jul 22.

DOI:10.1111/petr.13528
PMID:31328841
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6778726/
Abstract

Learning Health Networks (LHN) improve the well-being of populations by aligning clinical care specialists, technology experts, patients and patient advocates, and other thought leaders for continuous improvement and seamless care delivery. A novel LHN focused on pediatric transplantation, the Starzl Network for Excellence in Pediatric Transplantation (SNEPT), convened its inaugural meeting in September 2018. Clinical care team representatives, patients, and patient families/advocates partnered to take part in educational sessions, pain point exercises, and project identification workshops. Participants discussed the global impact of transplant from both a population and individual perspective, identifying challenges and opportunities where the Starzl Network could work to improve outcomes at scale across a variety of transplant-related conditions.

摘要

学习型健康网络(LHN)通过整合临床护理专家、技术专家、患者及患者权益倡导者以及其他思想领袖,来持续改进并实现无缝护理服务,从而提升人群的健康水平。一个专注于儿科移植的新型学习型健康网络——史塔兹儿科移植卓越网络(SNEPT),于2018年9月召开了首次会议。临床护理团队代表、患者以及患者家属/权益倡导者共同参与了教育课程、痛点分析活动以及项目识别研讨会。参与者从人群和个体角度讨论了移植的全球影响,确定了史塔兹网络可以努力改善各种移植相关病症大规模治疗效果的挑战和机遇。