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“我几乎无法呼吸”:探索父母养育患有功能障碍儿童的体验。

'I can hardly breathe': Exploring the parental experience of having a child with a functional disorder.

机构信息

Department of Clinical Research, Child- and Adolescent Psychiatry Odense, University of Southern Denmark, Odense, Denmark.

Central Denmark Region, Research Unit, Centre for Child and Adolescent Psychiatry, Aarhus University Hospital, Risskov, Aarhus, Denmark.

出版信息

J Child Health Care. 2020 Jun;24(2):165-179. doi: 10.1177/1367493519864745. Epub 2019 Jul 23.

Abstract

Functional disorders in children and adolescents are common. Still, little is known about parents' experience of having a child with a functional disorder. The aim of this qualitative interview study was to explore challenges encountered by parents caring for a child undergoing treatment for functional disorder. Sixteen parents to children with functional disorders were interviewed when their child was referred from a paediatric department for further specialized treatment with family therapy in child and adolescent mental health services. Analysis identified three themes, reflecting the parental experiences: parents in limbo, which described how limited knowledge about functional disorders among professionals in non-specialized settings influenced parental roles; a counterintuitive kind of caring, describing parental struggles with adhering to treatment recommendations for functional disorders; and challenges to parental identity, describing parental emotional challenges. These challenges may bar the acceptance of psychological treatment approaches in families with a child with functional disorders.

摘要

儿童和青少年的功能性障碍很常见。然而,人们对父母照顾患有功能性障碍的孩子的体验知之甚少。本定性访谈研究的目的是探讨父母在照顾接受功能性障碍治疗的孩子时所面临的挑战。16 名儿童功能性障碍患儿的家长在其孩子被儿科部门转介至儿童和青少年心理健康服务机构进行家庭治疗的进一步专门治疗时接受了采访。分析确定了三个主题,反映了父母的经历:处于困境中的父母,描述了非专业环境中的专业人员对功能性障碍的了解有限如何影响父母的角色;一种违背直觉的关爱,描述了父母在坚持功能性障碍治疗建议方面的困难;以及对父母身份的挑战,描述了父母的情感挑战。这些挑战可能会阻碍有功能性障碍儿童的家庭接受心理治疗方法。

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