“没有人承认这对人们有什么影响”：对患有严重先天性心脏缺陷儿童的父母心理健康的定性探讨。
"There's no acknowledgement of what this does to people": A qualitative exploration of mental health among parents of children with critical congenital heart defects.
机构信息
Department of Psychology, Syracuse University, Syracuse, NY, USA.
Department of Medicine, University of California, San Francisco, San Francisco, CA, USA.
出版信息
J Clin Nurs. 2018 Jul;27(13-14):2785-2794. doi: 10.1111/jocn.14275. Epub 2018 Mar 13.
AIMS AND OBJECTIVES
The purpose of this study was to explore the psychological impact of parenting a child with a critical congenital heart defect and the feasibility and acceptability of integrating psychological services into paediatric cardiology care.
BACKGROUND
Children with critical congenital heart defect are at an increased risk for long-term behavioural, social and emotional difficulties. Data suggest that this risk is partially attributable to parental mental health, which is a stronger predictor of long-term behavioural problems in congenital heart defect children than disease-specific and surgical factors. Parental stress and mental health are thus important intervention targets, especially among high-risk families.
DESIGN
This article presents data from a qualitative study with 25 congenital heart defect parents (n = 15) and providers (n = 10).
METHODS
Using thematic analysis, semi-structured in-depth interviews were transcribed and coded by the first and second author to identify major themes and subthemes.
RESULTS
Results of the interviews were organised into four major themes: (i) the psychological impact of parenting a child with critical congenital heart defect, (ii) factors that influence the psychological impact of parenting a child with critical congenital heart defect, (iii) how and when to psychologically support congenital heart defect parents and (iv) feasibility and acceptability of integrating psychological support into congenital heart defect care. Providers and parents endorsed the integration of mental health treatment into routine congenital heart defect care and identified several practical issues related to feasibility (e.g., funding and space) that should be considered prior to implementation.
CONCLUSIONS
Parents of children with critical congenital heart defect need access to mental health services, and integrating these services into routine paediatric cardiology care is a novel and practical way for parents to receive the treatment they need.
RELEVANCE TO CLINICAL PRACTICE
Suggestions for how the field of paediatric cardiology could begin to integrate mental health services into congenital heart defect treatment are provided.
目的
本研究旨在探讨养育患有严重先天性心脏缺陷儿童对父母心理的影响，以及将心理服务整合到儿科心脏病学护理中的可行性和可接受性。
背景
患有严重先天性心脏缺陷的儿童存在长期行为、社交和情感困难的风险增加。数据表明，这种风险部分归因于父母的心理健康，父母心理健康是先天性心脏病儿童长期行为问题的更强预测因素，而不是疾病特异性和手术因素。因此，父母的压力和心理健康是重要的干预目标，尤其是对于高危家庭。
设计
本文介绍了一项有 25 名先天性心脏病患儿父母（n=15）和提供者（n=10）参与的定性研究的数据。
方法
使用主题分析，由第一和第二作者对半结构化深入访谈进行转录和编码，以确定主要主题和子主题。
结果
访谈结果分为四个主要主题：（i）养育患有严重先天性心脏缺陷儿童的心理影响，（ii）影响养育患有严重先天性心脏缺陷儿童的心理影响的因素，（iii）如何以及何时为先天性心脏病患儿的父母提供心理支持，以及（iv）将心理支持整合到先天性心脏病护理中的可行性和可接受性。提供者和父母都认可将心理健康治疗纳入常规先天性心脏病护理，并确定了与可行性相关的几个实际问题（例如，资金和空间），在实施之前应予以考虑。
结论
患有严重先天性心脏缺陷儿童的父母需要获得心理健康服务，将这些服务整合到常规儿科心脏病学护理中是父母获得所需治疗的一种新颖而实用的方式。
临床相关性
为儿科心脏病学领域如何开始将心理健康服务整合到先天性心脏病治疗中提供了建议。
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